Do you ever get tired of....

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Permalink Reply by Jane Lacher on October 25, 2009 at 6:57am

I agree!! I am also tired of people telling me to just ignore such cruel remarks. Much easier said than done, especially when that person has flawless skin and has no clue as to how those remarks hurt.

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Permalink Reply by Carrie on October 25, 2009 at 9:47pm

I can completely relate!! I never know whether to get frustrated at someones comments.. or their staring.... but like you... there are some days I handle it better than others! I know its curiosity.. and lack of understanding.. but there are days that the curiosity and lack of understanding... doesn't come across as compassionately as some mean it to be.. and others aren't compassionate at all...

Take care Arlene!

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Permalink Reply by Cindy Foe on October 26, 2009 at 7:48am

First off let me say....on my bad days I get so angry when someone says something about my psoriasis being a "nasty rash" or bad poison ivy”…..but with the same breath I must say on my bad when I don’t feel so bad (for the past 5 ½ months for sure) I have dared someone to say anything about psoriasis good or bad…I will sit and talk your ear off about anything and everything I know about it…best thing to do is to talk about it every chance I get, that gets the word out there…the more the word is out there the more people know about us and the less we have to deal…I will gladly take the brunt of all the comments if it would help someone else with psoriasis that didn’t have a good day deal…I wish there were a way to just make people understand that words hurt, sometimes as bad as psoriasis!!!!

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Permalink Reply by Bob Van Houten on October 26, 2009 at 10:30pm

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Sharicka Long on October 27, 2009 at 8:15am

Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Bob Van Houten on October 27, 2009 at 11:30am

Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:

Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Dal L. Gordon on January 6, 2010 at 7:49am

Ya Arlene, or you could turn it around by saying something like it's one of those things that comes and goes like opinions.

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Permalink Reply by christina boberg on January 6, 2010 at 1:55pm

I know what you mean. When i was first diagnosed with P i had like red dots all over my arms and my boyfriend's sister (in her 20's mind you) freaks out and ask if i had like bed bugs or something. OOO and then i went to a softball game and bcuz of the medicine i was using it kinda made the spot disfigured and i was asked if i had ring worm! I wanted to cry.

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Permalink Reply by Melissa Denise on February 5, 2010 at 1:05pm

I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:

Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:

Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Dal L. Gordon on February 5, 2010 at 1:19pm

I got tire of P the first day I went school at 6 yrs old when I was labeled the alligator boy.
Melissa Denise said:

I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:

Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:

Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Dal L. Gordon on February 5, 2010 at 1:27pm

You are looking at a life long challenge when you try to educate the general public concerning this condition, and I quite frankly would be bored still in trying to do so, I just its psoriasis and look it up, we live in an educated society, let them do their own research like a professor once told me.
Melissa Denise said:

I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:

Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:

Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:

Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!

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Permalink Reply by Wasim Naqvi on February 9, 2010 at 3:28am

lol i agree with the kids part....its funny actually. You literally start fighting with yourself, in my case my masculinity. Your state of war is "Shall i wear a half-sleeve t-shirt while the snow flakes are visible". At some point u just stop bothering and you assume you have conquered your fear...until you meet a kid who's half the size of you, standing somewhere in public to the side of the mother shouting..."eewwwwww Mummy look at that man he is burnt" then running to the other side of the mother seeking a barrier of defense as if your gonna eat him alive....everyone 20 feet in proximity to that child hears the call and all of a sudden you feel like those glaring eyes are enough to press your thoughts and feel like ur gonna explode or just go on a defensive shouting "It's not contagious, please accept me, I am Human, honestly I'm not a man eating martian" lol

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