Psoriasis Cure Now Community Network

I am so tired of people who just have to comment when they notice what is going on with my skin. Maybe I'm just grouchy lately because of the P, but I am so tired of people saying, "Oh, looks like you have quite a rash there". If only. At least a rash would go away eventually. I just wonder why people have to comment. Do they think I don't know about it?

Anyway, just felt like venting.

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I agree!! I am also tired of people telling me to just ignore such cruel remarks. Much easier said than done, especially when that person has flawless skin and has no clue as to how those remarks hurt.
I can completely relate!! I never know whether to get frustrated at someones comments.. or their staring.... but like you... there are some days I handle it better than others! I know its curiosity.. and lack of understanding.. but there are days that the curiosity and lack of understanding... doesn't come across as compassionately as some mean it to be.. and others aren't compassionate at all...

Take care Arlene!
First off let me say....on my bad days I get so angry when someone says something about my psoriasis being a "nasty rash" or bad poison ivy”…..but with the same breath I must say on my bad when I don’t feel so bad (for the past 5 ½ months for sure) I have dared someone to say anything about psoriasis good or bad…I will sit and talk your ear off about anything and everything I know about it…best thing to do is to talk about it every chance I get, that gets the word out there…the more the word is out there the more people know about us and the less we have to deal…I will gladly take the brunt of all the comments if it would help someone else with psoriasis that didn’t have a good day deal…I wish there were a way to just make people understand that words hurt, sometimes as bad as psoriasis!!!!
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:
Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
Ya Arlene, or you could turn it around by saying something like it's one of those things that comes and goes like opinions.
I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:
Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:
Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
I got tire of P the first day I went school at 6 yrs old when I was labeled the alligator boy.
Melissa Denise said:
I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:
Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:
Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
You are looking at a life long challenge when you try to educate the general public concerning this condition, and I quite frankly would be bored still in trying to do so, I just its psoriasis and look it up, we live in an educated society, let them do their own research like a professor once told me.
Melissa Denise said:
I know I am reading these late, but just joined, I told a lady once I had aids, She just about jumped outa her skin...Most think it's a skin burn, like road rash, I tell them I wrecked my motorcycle....I guess I should really educate them, but you get defensive, they are insulting, and it hurts.

Bob Van Houten said:
Kids are different, I agree they need to be educated, but adults are a different story, they need to be put in their place. People can be cruel, and self pity leads, on our part, leads to depression, and the worsening of the disease/quality of life. I went through the process many times throughout my bouts, with this disease, and expect I may again. I know what I say may come off blunt, but I have not regrets. Helps my mind set, may not work for everyone. Remember we have an advantage of finding out who is really a righteous and compationate person very quickly. Did you ever see the movie Papillon, starring Steve McQueen? There is a seen where he stumbles into a Leper colony, for help. He is asked to share a cigar, to test his integrity. Very interesting way he handles it. I know it's the movies, but it hit home for me. Check it out if you haven't seen it.

Sharicka Long said:
Lol...Knock 'em out. Bob, I think I like your thinking. Lol, in all seriousness, I've run home in tears over the comments. I'd much rather someone ask. It's loads better than the stares. I think my worst culprits are the kids. They don't know any better. However, when my daughter stares at someone with any disfigurements, I put her in line quickly...It's the right thing to do. Maybe I say this because of my own disfigurements.

Bob Van Houten said:
Arlene,
As a women it must be much worse for you than I. What I usually do is walk up to the person tell them I am highly contagious, touch them, and watch the look in the eye. When in doubt knock em out. People are idiots, so they need to be treated as such. I have had this disaease for 30+ years. If people don't like me because of my actions, then screw them, I have no use for them. My true friends usually stop people from asking the idiotic questions before they happen. Don't hold back, blast them, I think you will feel much better to get you're anger out. After all does it really matter what people think? You tell me!!!!
I don't have time for illiterate psoriatic people, time is too short to continually explain to people what there illiterate of, you may explain to the parent if you feel it's needed, but we live in a very well educated world, the parents should handle the instructions of their children and explain to the children that some people have skin disorders and take it up with them later at home.
Hi am new to this - I have had the P for 5-6 years now - nothing major - only knees and an elbow small spots injected with cortisone. I just had a bout of strep and I erupted with guttate all over - what a nightmare... spots everywhere and I am not looking forward to spring if I look like this. I am out going - coach all the kids sports... the mental aspect of this driving me crazy. I have numerous creams to apply, shampoo because my scalp itches so bad.. and tanning 3 days a week. Anyone using biologics?

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