Does Ramicade work for everyone?

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Permalink Reply by Patsy Wessinger on October 30, 2009 at 9:38pm

Hi Ryan,
Well Humira was a flop for me (lots of sinus infections) so far Remicade seems to be better for the arthritis psoriasis not so much, but I have only had three infusions. Did you have your 1st infusion this week?

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Permalink Reply by Cindy Foe on October 30, 2009 at 10:54pm

I have never been on Humira I could not bring myself to do the auto inject thing....I have a huge fear of that....so I cant compare to that...I was on Enbrel for 5 years and i also had the flip flop thing go on...but honestly...I think that is with every medication out there for psoriasis....you find something that works then it don't then it does...it is all just a nasty cycle that you wish would end... I'm on Remicade and love how it works for my psoriasis....I am the opposite from Patsy...the Remicade is wonderful for my psoriasis but is not helping my arthritis at all in fact it seems to be worse... I'm starting to have side effects such as lost of memory loss mood changes vision changes and i have lost most of the left peripheral vision in both eyes along with headaches that are not so bad I was put in the hospital with them for a week.......I have talk with my derm and my regular doctor and my eye doctors and we all agree we will continue on the drug and see how things go for now...I admit I'm a little worried but I think it will all work out....every drug has side effects and I'm one of those people that get the weird rare crazy ones...lol...i just chalk it up to ah well i guess this can happen...lol....i say give it try Ryan and push your derm to see you faster than three months...you need to get something started now...

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Permalink Reply by shanika mccrae on October 31, 2009 at 1:27pm

I was on Enbrel for five years before it stop working for me. I started remicade in july because it was one of the few options i had left. It cleared me just as fast as enbrel did but ive had alot of side effects from the remicade. When i was on enbrel i had maybe three sinus infections a year but remicade has been a different story. Im happy to be clear but ive had staph four times and i get a bladder infection after every infusion. I stay tired and have headaches and stomach pains. I dont think remicade is worth it at times but everyone is different so i guess you just have to try it out yourself! good luck and i hope you find something to clear you up!

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Permalink Reply by Rhonda on November 2, 2009 at 6:16pm

In short, the answer is, "No".
Remicade is a miracle drug for many, many people. A lot of my friends are on it and it has totally changed their lives for the better.
I was on it for 10 months and because it cleared my skin, my doctors and I ignored a lot of the symptoms that I was having. (It is sad when you want clear skin so badly that you ignore serious side effects.) However, I recently had to get off of it because the side effects got so serious, they couldn't be ignored. I should have gotten off of it months before I did but the doctors didn't recognize what was happening to me. Hindsight is 20-20 and this is not the drug for me.
However, on the other side of the coin, Remicade is a miracle drug for many and everyone is different. What may not work for me, works wonders for others.

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Permalink Reply by Robert Wolfe on November 5, 2009 at 5:37pm

My wife has been every medication on the market both oral and injections and all seemed to work for a little bit of time then she stopped responding to then all except Remicade it work really good for her but she was on a pretty high dose of it every 6 weeks instead of 8. She had to go off it when she developed drug induced lupus from it. After she went off it she was back on Enbrel . Which helped for a while she ended up in Johns Hopkins with liver and kidney failure which she was told came from being on Metho for 5years. She went into a coma and received a liver transplant after one week in the hospital. Her P stayed in check for almost 6 months after that. In the last year in a half she has been on Enbrel then went to Humira which was working ok but her Liver enzymes went up and that is not good for a transplant person. Then it took a long time for them to go down and was not put on any thing for 3 to 4 months. By then the p was way out of control maybe 60% covered so back on Enbrel which for about 2 months did nothing and she got worse so then on to Enbrel two shots a week after 5 months nothing just getting worse then she was put on Simponi she has had 3 shots and shows very little improvement. Next week she will she will be getting her first dose of Stelera the 90mg dose and we are we are hopping it will work as good as we have heard. Like I said earlier what worked best for her over the past 15years was the Remicade

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Permalink Reply by Dal L. Gordon on November 7, 2009 at 4:12pm

Remicade is, and can be very nausea, and depletes your strength, at least for me, it may simply depend on the extreme of your need, or how extreme your condition is.

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