Psoriasis Cure Now Community Network

Hello! I'm new and I'm here to meet people who have what I have. It really is amazing to meet other people who suffer with psoriasis. I feel a sense of comfort in knowing I am not alone. 

I have had psoriasis for about 3 years now. I've been lucky to find a combination of medications that work for me and have had ample time to find the means to cope with my disease. I hope for everyone of you that you find the strength to push forward in your battle with psoriasis. Don't give up! You all are amazing, beautiful people. Educate others, reach out, find the support that you need. It makes a world of difference! 


This was my state about 3 months ago in the middle of a break out. I did these pictures as a sort of coming out project. I am happy to say my legs look about 95% better than this now. 

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It's not entirely new, no. I have two great aunts with Psoriasis. My mother and grandfather have RA, so I've known about this particular disease and autoimmune diseases in general for years.

How about you? How long have you had it?
To be honest, I'm not completely sure. I mean I know the biology of it, I've been through enough college to get the chemical and biological things that make it happen. I think to ponder where this comes from is like asking why people get cancer? Who really knows, you know? it just happens and you deal.

I personally think it's everything. Our environment, our bodies, the air we breathe. We introduce ourselves to so many toxins without even knowing it. Some of it is unavoidable, sort of the price of just being alive.
Hi Caroline, Welcome to the site.
Wasim, I've heard of the food things. Something about the toxins in our food and I believe the term they use is "leaky gut." Now, I will tell you I did some research on better eating and most people say stay away from too much acidic food. Basically trying to keep your body in an alkaline state. Tons of people swear by this, I've tried it here and there, but it's crazy strict.

Biologically speaking, I believe it's something to do with our body turning on a gene that sends signals for you to over produce a protein.. causing way too much skin turn over. Enbrel works to inhibit a particular protein thought to cause inflammation in RA, PA, and Psoriasis. Why that gene gets turned on? God only knows. Of course we carry the gene because someone in our family probably carried it.

There is tons of research done on this kind of thing. So many diseases work this way. It's interesting to read about... you should look up the chemical structure of Enbrel and the clinical trails. It's mind blowing how much research has been done just for that one medicine and there are tons more pushing forward.
Thanks! :)
Hi! Tis okay. I've read up on it and there are some serious long term risks, but I'd rather live a decent life now and later face that than have no quality of life for the entire duration of my life. I'm pretty sure you can read up on the chemical break down of Enbrel on the website. Most meds come with a case study included with the packaging. Try www.enbrel.com

Wasim Naqvi said:

Hi Caro, 

 

Sorry i couldn't reply earlier, i've been on non-stop travels overseas. How have u been keeping yourself?

 

I would be definitely interested in following up more on the 'Enbrel Chemical Structural crack down' to get my hands on some more nitty in-depth read. If you know of any website which provides full details of the med i'd be interested in following up. Truth is I miss UK BIG TIME!!!!!!!! It's the land that gave me birth and nurtured me into a very proud fish n chip with tomato ketchup MAN but unfortunately to keep my skin at bay I have to live in a warmer climate and hence I left the good ole land for Dubai. Many drugs worked for me but the problem is when I read into the long term side effects I was put off and altogether dropped the desire to be conventionally owned by pharmaceutical suppliers. But if Enbrel (something I have not tried) has a decent take to it and comes with a long term thumbs up I would definitely consider it.

I saw results in about a month. My scalp became clear which was a big plus, considering it was completely covered and bled all the time. And yes, after other treatments which failed my doctor gave me the option. No, I am from the United States and receive my meds for free through the Enliven program offered by Enbrel patients whose insurance will not cover it or those who have no insurance.

Wasim Naqvi said:
k, i went through almost the whole website, interesting! The side effects seem a little harsh. How quick did u see positive results when starting the treatment and was it prescribed by your dermatologist under the national ministry of health regulations? ok something just popped up in my mind, ur not british r u?

Haha. It's worth considering for sure.

I'm a waitress and a student. Basically, I'm a poor poor girl. lol 


Wasim Naqvi said:

Well the best i can do i guess is when returning to UK if the p hits the fan, i might consider enbrel to be ma supermaaaaannn.

 

Other than Mr P, if u dont mind sharing, what do u do for a living? I think u've already told me but dont blame my memory blame the recession.

Hi my name is John and im 44 and have just found out that I have 3 different types of P and I am a little freaked out by it. I have been to the ER twice in the last month because of the pain and itching. It is great to see that I am not alone in this but I still do not know how I got or what triggerered it. I know of no one in my family that has had anything close to it, so I am just wondering if the gene could jhave layed dormant in me until recently? The ER docs treated it with several weeks of doses of a steroid called prednisone-20mg that I have just found out by a dermatologist suppresses the disease and I should expect once I am off it, it may cause me to have a severe breakout. So thanks for that ER doc. Well I just wanted to say hi and hoping to speak with others about this becasue the doctors that I have seen do not seem to have the time to talk. I do have pictures on here to track my progress so any advice or help you can offer would be greatly appreciated.

I'm taking prednisone now for 15 months and the specialist told me I'll have to take it in small doses forever. But I must say I'm feeling better. I have an excellent team of docs that always find time to talk so I'm thankful for that..........bye



John C said:

Hi my name is John and im 44 and have just found out that I have 3 different types of P and I am a little freaked out by it. I have been to the ER twice in the last month because of the pain and itching. It is great to see that I am not alone in this but I still do not know how I got or what triggerered it. I know of no one in my family that has had anything close to it, so I am just wondering if the gene could jhave layed dormant in me until recently? The ER docs treated it with several weeks of doses of a steroid called prednisone-20mg that I have just found out by a dermatologist suppresses the disease and I should expect once I am off it, it may cause me to have a severe breakout. So thanks for that ER doc. Well I just wanted to say hi and hoping to speak with others about this becasue the doctors that I have seen do not seem to have the time to talk. I do have pictures on here to track my progress so any advice or help you can offer would be greatly appreciated.

Thank you Caroline for starting this thread.  

I am relatively new to this site and appreciate the opportunity to share with others. Your beautiful photograph has inspired me to create something of my own.  Thank you. I am currently supporting myself with a crazy strict food experiment during the drug free period of treatment leading up to my first Humira injection next week. I have experienced and experimented for 19 years with multiple and varied sometimes crazy P treatments. While a little "self injection" shy, I am excited about the possibility of this latest treatment providing my biology further support in mitigating these crazy symptoms.  I have recently developed PA as well and understand the benefits of the medicine being offered to me.  

You certainly sound like an amazing woman.

Gratitude to all of you who posted on this discussion as well. <3

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