How long have you suffered from psoriasis?
How long have you suffered from psoriasis? I've been suffering with psoriasis for over 23 years and am hoping every single day we can find a cure!
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Replies to This Discussion
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Permalink Reply by Tim Karth on -
I have had P for over 30 years. PA for the last 5 years. Currently on HUMIRA. Will be starting STELARA very soon as afer 3 years on HUMIRA, it has worn off. Had severe rection to RAPTIVA. It has since been pulled. Peace to all!
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Permalink Reply by Barbara Parker on -
Wow, 23 years. For me it has only been 3 years. Does it get any easier to deal with?
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Permalink Reply by Dal L. Gordon on -
Well Gary responding to this is rather redundant if it weren't for the tragedy of it, I'm having to grow a beard again of which I detest, beard are fine, but mine is gray, and it make's me older than I am, but so it, I suppose I will never shave this one off. And so Gary I surmise you have a beard, crazy story HA just think of the poor lady's that do not have this luxury , of which I'm sure they would want if they could.
Garry Leavy said:Hi Everyone,
I found this website today and I am glad that I did. I have had P for about 12 or 13 years, it started with a small red lesion on my face which I thought nothing of. Now it's everywhere, I mean EVERYWHERE....even down there yes. The most annoying part of it for me is the fact that I have it on my face and hands because these are the parts which are hardest to cover up. It's very troublesome to have it on my face, it's on my chin, my nose, my forehead, behind my ears and it's a huge daily battle to just keep it at bay, let alone get rid of it, even for a period of time.
I have tried all the topicals like Dovonex...I'm trying to remember some of the others but I am drawing a blank, you would all know the ones I am sure. I have zero faith in doctors, they are like gunslingers how quickly they reach for that prescription pad knowing that a few more $$$ will come rolling in once they sell some pharmeceuticals product....anyhow, every topical I have tried is a mere temporary fix...it's like whack-a-mole, every time I clear up one area...guess what? Here's Johnny with another lesion to deal with. It has gotten away from me at this stage to where I just live with it on roughly 30%-40% of my body...I take care of the most obvious places like I said, my hands and face.
I tried the whole diet regime by reading 'Healing Psoriasis, the natural alternative'...I'm not sure if any of you have read it, it truly is well explained and thought out and the author has dedicated his life to it, he believes it's spinal and small intestine related. It's not a quick-fix diet, it's a lifestyle...I did it the year of my wedding (my wife did the Atkins diet) and I lost 40lbs and I looked and felt great, although my skin was not a recipient of all my hard work. The author has plenty of testimonies from success stories, mine just was njot one of them.
I have a wonderful wife and two brilliant little boys who keep me going...my boys call P "daddy's boo-boos"...they are the only three people I feel comfortable having my skin exposed in front of. My own family and in-laws know I have it but they're not truly sure to the extent it's at, this is just how private and embarassed I am about it. I went to a small beach with my in-laws last summer and while I was dressed head to toe, eveyone else was in their bathing suits etc...needless to say it got annoying with the constant "aren't you hot in those clothes" comment after the 15th time....I had to tell my wife to tell her family the next time she speaks to them to kindly inform them.....and I'm a very outgoing person, just this P kills me. The one thing that breaks my heart is not being abkle to go swimming with my two sons, I LOVE the water and I know some of you probably have the F$#* them all attitude, I am still not at that point, so it's hard to sit at the side of the pool dressed the way I am while my wife and sons play together.
I have had a few things said to me about it, my dopey neighbour said to me last summer (in front of our landlady no less) "Jesus Garry, whats that on your arms? It's not contagious is it?" as he laughed....I wanted to smack his fat arse around the backyard but when i saw him get carted off in an ambulance about three months later with a bad heart...I felt justice was served...very cold!
I also think I have been let go from two separate jobs because of it, I do not know for a fact (I work in the food service industry) but the pathetic excuse I was given for being terminated got me thinking....
Anyways, sorry if I have waffled I just wanted to share my story, I'm sure some of you can relate.
Regards,
Garry
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Permalink Reply by Dal L. Gordon on
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Gary I'm 62, IT STARTED WHEN i WAS 5.
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Permalink Reply by Dal L. Gordon on
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Oh I TEND TO IT with embrel, and methotrexate, thats bad my condition is, so my meds address but I'm just getting started back with theses two meds.
Garry Leavy said:Dal,
I have tried a short bear...you know the five o'clock shadow...but you can still see it through the beard, plus it then gets worse if I ignore it, so I choose the clean shave and the daily torment....I don't want to even imagine how bad it would get on my face if I did not tend to it......
Dal L. Gordon said:Well Gary responding to this is rather redundant if it weren't for the tragedy of it, I'm having to grow a beard again of which I detest, beard are fine, but mine is gray, and it make's me older than I am, but so it, I suppose I will never shave this one off. And so Gary I surmise you have a beard, crazy story HA just think of the poor lady's that do not have this luxury , of which I'm sure they would want if they could.
Garry Leavy said:Hi Everyone,
I found this website today and I am glad that I did. I have had P for about 12 or 13 years, it started with a small red lesion on my face which I thought nothing of. Now it's everywhere, I mean EVERYWHERE....even down there yes. The most annoying part of it for me is the fact that I have it on my face and hands because these are the parts which are hardest to cover up. It's very troublesome to have it on my face, it's on my chin, my nose, my forehead, behind my ears and it's a huge daily battle to just keep it at bay, let alone get rid of it, even for a period of time.
I have tried all the topicals like Dovonex...I'm trying to remember some of the others but I am drawing a blank, you would all know the ones I am sure. I have zero faith in doctors, they are like gunslingers how quickly they reach for that prescription pad knowing that a few more $$$ will come rolling in once they sell some pharmeceuticals product....anyhow, every topical I have tried is a mere temporary fix...it's like whack-a-mole, every time I clear up one area...guess what? Here's Johnny with another lesion to deal with. It has gotten away from me at this stage to where I just live with it on roughly 30%-40% of my body...I take care of the most obvious places like I said, my hands and face.
I tried the whole diet regime by reading 'Healing Psoriasis, the natural alternative'...I'm not sure if any of you have read it, it truly is well explained and thought out and the author has dedicated his life to it, he believes it's spinal and small intestine related. It's not a quick-fix diet, it's a lifestyle...I did it the year of my wedding (my wife did the Atkins diet) and I lost 40lbs and I looked and felt great, although my skin was not a recipient of all my hard work. The author has plenty of testimonies from success stories, mine just was njot one of them.
I have a wonderful wife and two brilliant little boys who keep me going...my boys call P "daddy's boo-boos"...they are the only three people I feel comfortable having my skin exposed in front of. My own family and in-laws know I have it but they're not truly sure to the extent it's at, this is just how private and embarassed I am about it. I went to a small beach with my in-laws last summer and while I was dressed head to toe, eveyone else was in their bathing suits etc...needless to say it got annoying with the constant "aren't you hot in those clothes" comment after the 15th time....I had to tell my wife to tell her family the next time she speaks to them to kindly inform them.....and I'm a very outgoing person, just this P kills me. The one thing that breaks my heart is not being abkle to go swimming with my two sons, I LOVE the water and I know some of you probably have the F$#* them all attitude, I am still not at that point, so it's hard to sit at the side of the pool dressed the way I am while my wife and sons play together.
I have had a few things said to me about it, my dopey neighbour said to me last summer (in front of our landlady no less) "Jesus Garry, whats that on your arms? It's not contagious is it?" as he laughed....I wanted to smack his fat arse around the backyard but when i saw him get carted off in an ambulance about three months later with a bad heart...I felt justice was served...very cold!
I also think I have been let go from two separate jobs because of it, I do not know for a fact (I work in the food service industry) but the pathetic excuse I was given for being terminated got me thinking....
Anyways, sorry if I have waffled I just wanted to share my story, I'm sure some of you can relate.
Regards,
Garry
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Permalink Reply by angelique pascual on -
ive had psoriasis for 6 yrs. still praying for a permanent cure. i just recently used a cream called clonovate, but my skin seemed not improving, i went to see another doctor and gave me a herbal medicine hope it will work well with me. Godbless Us~
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Permalink Reply by Dal L. Gordon on
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Angel, I'm a 62 year male, I've had P since I was 5, not great I know, currently I use Embrel, and Methotrexate, it has some control, I have a very stubborn condition.
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Permalink Reply by Chuck on
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I'd love to see the mansions that the people who write these books with the 'cures' live in. Scam.
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Permalink Reply by Melissa Denise on -
I am just hearing the information on what we eat. What foods should we avoid that have a tendancy to irritate the lesions. I know yeast, beer, I itch and turn red from it. Can anyone tell me other things we should avoid.
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Permalink Reply by Michael P Taylor Sr. on -
32 years and counting. I was just 10 years old when my first flare up happened. It reared it's ugly head by showing up widespread over my torso and extemities. The first Doctor we went to was a gen pract who diagnosed it as scabies and gave my mother a cream to kill them off. She was upset at his mis-diagnosis then, but now how I wish he was right! I've used everything available I believe. Topicals ranging from tar, banana peels, bacon grease, hydro, clobetesol, dovonex, triam, etc... and orals from metho, soriatane, prednisone, zinc, fish oil, etc... to biologicals enbrel, humira, raptiva... Most showed some clearing at first, only to see it return, sometimes with a vengance! But one thing has always worked throughout the 32 years and thats sunlight. I now use methotrexate and tanning beds during the winter and just sun in the summer. Gives my liver a break cutting the Metho out for a few months.
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Permalink Reply by Melissa Denise on
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I have been on metho, many years ago. I had difficulty with nausea while on it. Do you take it orally, or shots? Shots made the nausea much less, but still the day after shot was difficult, but tolerable. Light is what cleared me years ago. I have slowly started coming out of a 10 yr remission, and it is coming back with a vengence. I cannot get it under control, it's consuming me again!!! Amazing how it effects our disposition. I have gone from being so active, and full of life back into a shell it feels like. It's a continual battle for us all. This web site helps reading others, and knowing your not alone with this. Hoping the summer months will bring some releif! A day at Hatteras should cook it off! hahaha
Welcome Michael, and any other new comers
Michael P Taylor Sr. said:32 years and counting. I was just 10 years old when my first flare up happened. It reared it's ugly head by showing up widespread over my torso and extemities. The first Doctor we went to was a gen pract who diagnosed it as scabies and gave my mother a cream to kill them off. She was upset at his mis-diagnosis then, but now how I wish he was right! I've used everything available I believe. Topicals ranging from tar, banana peels, bacon grease, hydro, clobetesol, dovonex, triam, etc... and orals from metho, soriatane, prednisone, zinc, fish oil, etc... to biologicals enbrel, humira, raptiva... Most showed some clearing at first, only to see it return, sometimes with a vengance! But one thing has always worked throughout the 32 years and thats sunlight. I now use methotrexate and tanning beds during the winter and just sun in the summer. Gives my liver a break cutting the Metho out for a few months.
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Permalink Reply by Dal L. Gordon on
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Yes I agree with nausea ,but my dosage will be very low, the is to help my embrel injections.
reason
Melissa Denise said:I have been on metho, many years ago. I had difficulty with nausea while on it. Do you take it orally, or shots? Shots made the nausea much less, but still the day after shot was difficult, but tolerable. Light is what cleared me years ago. I have slowly started coming out of a 10 yr remission, and it is coming back with a vengence. I cannot get it under control, it's consuming me again!!! Amazing how it effects our disposition. I have gone from being so active, and full of life back into a shell it feels like. It's a continual battle for us all. This web site helps reading others, and knowing your not alone with this. Hoping the summer months will bring some releif! A day at Hatteras should cook it off! hahaha
Welcome Michael, and any other new comers
Michael P Taylor Sr. said:32 years and counting. I was just 10 years old when my first flare up happened. It reared it's ugly head by showing up widespread over my torso and extemities. The first Doctor we went to was a gen pract who diagnosed it as scabies and gave my mother a cream to kill them off. She was upset at his mis-diagnosis then, but now how I wish he was right! I've used everything available I believe. Topicals ranging from tar, banana peels, bacon grease, hydro, clobetesol, dovonex, triam, etc... and orals from metho, soriatane, prednisone, zinc, fish oil, etc... to biologicals enbrel, humira, raptiva... Most showed some clearing at first, only to see it return, sometimes with a vengance! But one thing has always worked throughout the 32 years and thats sunlight. I now use methotrexate and tanning beds during the winter and just sun in the summer. Gives my liver a break cutting the Metho out for a few months.
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