How long have you suffered from psoriasis?

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Permalink Reply by Penny Hall on February 25, 2010 at 10:16pm

Hi everyone...My name is Penny. I am 31 and I have had P since I was 14. I started getting symptoms when my dad was diagnosed with Cancer....three months later when he passed I was pretty much covered. My doctor diagnosed me with shingles, Limes disease, and my favorite "an extreme allergy to dust". Before my mom invested a boat load into buying vinyl comforters and dust free systems for the house she decided to take me to a dermotologist. I was diagnosed right away with P and have been on every drug and therapy since.
My family who was also into holistic therapy engouraged me to try different diets, creams, and accupunture. The accupuncture worked on my face (very painful procedure where you are stabbed about 50 times in an isolated area and then they suction the blood out and apply a cream)----it ended when he told me I would need to shave my head and live in DC with him for the summer for similiar therapy....needless to say it was a Hell no, I was 16, and long hair helped me hide.
I did well with light therapy until I started having side effects from the oxyloren. I had to have my nose carterized from all of the nose bleeds and I cannot drink Dr. Pepper to this day because thats what I drank when I took those pills....two nights a week I was throwing up everthing (at 17, it was also a great diet).
I missed half the semester of my senior year because the anxiety got so bad. I have been blessed with supportive friends and family, but it wasnt enough.
I have done methotrexate, Cyclosporine, and now Enbrel for about 4 years. I have been broken out for about a month now, and I have a dr's appt tomorrow. I am going to ask for Stelara. I dont know if you can become immune to Enbrel, or if it was my last batch of cortizone shots for my feet. Anyone who has gotten those damn shots know that they are freakin Chuck Norris or Rambo after they get them because you feel like no pain should exist (especiallly 45 times on the soles of your feet).
I have had some pretty dark moments. I almost feel like I am paying for something I have done in my past at times. I feel like I am the only one that has this because there is no one else in Hampton VA that has it that I have seen. I have a great friends and family, and feel truly blessed, but there are times where I feel like I dont belong anywhere. I was so happy when I found this site...and all of your experiences make me feel like I do have a home.
I wish much luck to all of you and I am sorry for rambling.....but remember even though this horrible disorder separates us from what we consider normal....it makes us the strong, beautiful people that others can only dream about. You cannot bottle what we have gone through, will go through, and will continue to face.....you have to be it.....and we are.

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Permalink Reply by Dal L. Gordon on February 26, 2010 at 9:03am

Welcome home Penny, strange as it may seem this may be the only real family we have to identify with, cause if medical science can't find a sure cure this it, and if that's that the case I want to know more about you guys. And I'll start with myself. I was born in Winona MS in 1947, that would make me 62, my family moved to Chicago in 52, I was diagnosed with P at 12 only because the previous Dr. had no idea what I had, a Dr. Lawlor who practiced in Chicago looked me straight in the eye and said son you have psoriasis, and you will have it for the rest of your life, talk about a shocker, my Mother was dumbfounded, she said we will have to get a second opinion of which we've been getting ever since. Up until now he's been right in as much I would like to say he;s wrong I imagine I will die with it. But until then, I intend to enjoy my life as much as I can.......

Penny Hall said:

Hi everyone...My name is Penny. I am 31 and I have had P since I was 14. I started getting symptoms when my dad was diagnosed with Cancer....three months later when he passed I was pretty much covered. My doctor diagnosed me with shingles, Limes disease, and my favorite "an extreme allergy to dust". Before my mom invested a boat load into buying vinyl comforters and dust free systems for the house she decided to take me to a dermotologist. I was diagnosed right away with P and have been on every drug and therapy since.
My family who was also into holistic therapy engouraged me to try different diets, creams, and accupunture. The accupuncture worked on my face (very painful procedure where you are stabbed about 50 times in an isolated area and then they suction the blood out and apply a cream)----it ended when he told me I would need to shave my head and live in DC with him for the summer for similiar therapy....needless to say it was a Hell no, I was 16, and long hair helped me hide.
I did well with light therapy until I started having side effects from the oxyloren. I had to have my nose carterized from all of the nose bleeds and I cannot drink Dr. Pepper to this day because thats what I drank when I took those pills....two nights a week I was throwing up everthing (at 17, it was also a great diet).
I missed half the semester of my senior year because the anxiety got so bad. I have been blessed with supportive friends and family, but it wasnt enough.
I have done methotrexate, Cyclosporine, and now Enbrel for about 4 years. I have been broken out for about a month now, and I have a dr's appt tomorrow. I am going to ask for Stelara. I dont know if you can become immune to Enbrel, or if it was my last batch of cortizone shots for my feet. Anyone who has gotten those damn shots know that they are freakin Chuck Norris or Rambo after they get them because you feel like no pain should exist (especiallly 45 times on the soles of your feet).
I have had some pretty dark moments. I almost feel like I am paying for something I have done in my past at times. I feel like I am the only one that has this because there is no one else in Hampton VA that has it that I have seen. I have a great friends and family, and feel truly blessed, but there are times where I feel like I dont belong anywhere. I was so happy when I found this site...and all of your experiences make me feel like I do have a home.
I wish much luck to all of you and I am sorry for rambling.....but remember even though this horrible disorder separates us from what we consider normal....it makes us the strong, beautiful people that others can only dream about. You cannot bottle what we have gone through, will go through, and will continue to face.....you have to be it.....and we are.

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Permalink Reply by Melissa Denise on February 26, 2010 at 10:21am

Hey Penny, Welcome, and look forward to chatting with you more. I live in Hampton Roads, VA also!
Small world, see you are not alone!
I was wondering why they did not offer you to soak in the oxysoralin? I was taking it orally, and like you, cannot drink fruit juice any longer, I drank it when taking the pills, and the nausea, and throwing up ewwww, I totally relate! So, my derm doc changed it so I soaked in a whirlpool for about 20min, and then got in the lights. Worked wonderful! Had remission for 10 years. Now.....it's coming back with a vengence, which she told me it could happen. Unfortunately, I don't live in that city any longer"San Diego" I know Pariser in Norfolk used to offer same type therapy, but they were slow on uping the lights. If you would like more info, let me know. Again! Welcome! Your not alone!
Dal L. Gordon said:

Welcome home Penny, strange as it may seem this may be the only real family we have to identify with, cause if medical science can't find a sure cure this it, and if that's that the case I want to know more about you guys. And I'll start with myself. I was born in Winona MS in 1947, that would make me 62, my family moved to Chicago in 52, I was diagnosed with P at 12 only because the previous Dr. had no idea what I had, a Dr. Lawlor who practiced in Chicago looked me straight in the eye and said son you have psoriasis, and you will have it for the rest of your life, talk about a shocker, my Mother was dumbfounded, she said we will have to get a second opinion of which we've been getting ever since. Up until now he's been right in as much I would like to say he;s wrong I imagine I will die with it. But until then, I intend to enjoy my life as much as I can.......

Penny Hall said:

Hi everyone...My name is Penny. I am 31 and I have had P since I was 14. I started getting symptoms when my dad was diagnosed with Cancer....three months later when he passed I was pretty much covered. My doctor diagnosed me with shingles, Limes disease, and my favorite "an extreme allergy to dust". Before my mom invested a boat load into buying vinyl comforters and dust free systems for the house she decided to take me to a dermotologist. I was diagnosed right away with P and have been on every drug and therapy since.
My family who was also into holistic therapy engouraged me to try different diets, creams, and accupunture. The accupuncture worked on my face (very painful procedure where you are stabbed about 50 times in an isolated area and then they suction the blood out and apply a cream)----it ended when he told me I would need to shave my head and live in DC with him for the summer for similiar therapy....needless to say it was a Hell no, I was 16, and long hair helped me hide.
I did well with light therapy until I started having side effects from the oxyloren. I had to have my nose carterized from all of the nose bleeds and I cannot drink Dr. Pepper to this day because thats what I drank when I took those pills....two nights a week I was throwing up everthing (at 17, it was also a great diet).
I missed half the semester of my senior year because the anxiety got so bad. I have been blessed with supportive friends and family, but it wasnt enough.
I have done methotrexate, Cyclosporine, and now Enbrel for about 4 years. I have been broken out for about a month now, and I have a dr's appt tomorrow. I am going to ask for Stelara. I dont know if you can become immune to Enbrel, or if it was my last batch of cortizone shots for my feet. Anyone who has gotten those damn shots know that they are freakin Chuck Norris or Rambo after they get them because you feel like no pain should exist (especiallly 45 times on the soles of your feet).
I have had some pretty dark moments. I almost feel like I am paying for something I have done in my past at times. I feel like I am the only one that has this because there is no one else in Hampton VA that has it that I have seen. I have a great friends and family, and feel truly blessed, but there are times where I feel like I dont belong anywhere. I was so happy when I found this site...and all of your experiences make me feel like I do have a home.
I wish much luck to all of you and I am sorry for rambling.....but remember even though this horrible disorder separates us from what we consider normal....it makes us the strong, beautiful people that others can only dream about. You cannot bottle what we have gone through, will go through, and will continue to face.....you have to be it.....and we are.

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Permalink Reply by Nagy Llászló on March 4, 2010 at 9:15am

Sziasztok Laci vagyok magyarországról. Tudna nekem valaki ajánlani valami jó kezelési modot a sorimra?

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Permalink Reply by Matt Vincent on March 8, 2010 at 6:57am

So after 10yrs of trying various meds and myths, for the last 3months i have been on a strict elimination diet wich involved lots of leafy greens, heaps of water and lots of sunshine. Added regular exercise (daily) and 1hr of "me" time (reading,movie etc). Its now 90% gone and fading. Ive tried things like this in the past with little improvement but this time enough was enough. I had a written daily plan to follow and stuck to it religiously. Saw no change for 1st 4 weeks wich was disheartning but then the scaling stopped, then patches started reducing in size and now just light red marks. Only use a basic moisturiser every now and a gain from being out in the sun. Ive lost 10kgs, feel great and am wearing shorts!! (this is the only forum that can appreciate something so trivial)

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Permalink Reply by rachel meyer on March 8, 2010 at 1:18pm

I was diagnosed with psoriasis @ 14. A world renown dermatologist told me, there is no cure for psoriasis, but going to the Dead Sea located in Israel, will prevent it from spreading and possibly remove whatever patches already exists. The reason for that is, the Dead Sea is located 360 deg below sea level, therefor the sun has no ultra voilent rays(allowing the person to safely sit out..).....so the sun actually cures my existing patches and prevents new ones. I have been going there since I am 14......over 15 yrs...and thankfully...it has yet to spread!!!! I jUSt sit out in the sun..tanning, literally all day for about 10 days....and that gets me through an entire yr!!! I meet people from all over the world there!!! It really works!!

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Permalink Reply by angelique pascual on March 22, 2010 at 10:23am

hi rachel, just wondering, besides traveling to israel, do you still use some medications like ointments or moisturizing creams?

rachel meyer said:

I was diagnosed with psoriasis @ 14. A world renown dermatologist told me, there is no cure for psoriasis, but going to the Dead Sea located in Israel, will prevent it from spreading and possibly remove whatever patches already exists. The reason for that is, the Dead Sea is located 360 deg below sea level, therefor the sun has no ultra voilent rays(allowing the person to safely sit out..).....so the sun actually cures my existing patches and prevents new ones. I have been going there since I am 14......over 15 yrs...and thankfully...it has yet to spread!!!! I jUSt sit out in the sun..tanning, literally all day for about 10 days....and that gets me through an entire yr!!! I meet people from all over the world there!!! It really works!!

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Permalink Reply by Eric Creed on March 22, 2010 at 9:28pm

I have had it for 6 years now, it has only been getting worse in the past couple years. I have spots all over my body, my arms, legs, back, chest, stomach etc etc. I have tried steriod cream, it works to a degree, i am currently on the 10% vasoline lcd stuff, no success yet but doctor says wait couple more weeks. Its hard to keep under control because I find it really flares up when I go to the gym, when I get hot and sweaty. I wanted to try the mathotrexate pill but I hear it harms you really bad, any suggestions would be great!!!

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Permalink Reply by Barbara Parker on March 29, 2010 at 9:01am

AMEN!

kelly huynh said:

i've had psoriasis since i was 17 i'm 22 now, so not that long but it's a pain! i believed it started after i had stitches on my knee which never healed completely and turned into psoriasis. But i'mma kick its ass and not let it win! have a good day ppl!

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Permalink Reply by christina boberg on March 30, 2010 at 2:13pm

So I probably sound stupid in asking this but what does going to the dead sea do? I don't get it. Is there something in the water that helps your skin?

serge said:

Hi, I got pso since I'm 11., am now 24. It's the general psoriasis but i'm about 85% covered. I go since 12 years now every year to the dead sea and coming every year back completely clear, but it comes back. Although no other treatment helped me in the past (and I done almost all of them general medecine and alternatif) I started now enbrel almost 3 months and there's no difference yet. With the years I started to accept my pso and that's what brought me peace, it's all about acceptance!!
Pso sufferers can live a normal life and do what others do, we just have to put some cream on the way ;-)

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Permalink Reply by kimberly-ann gilbert on March 30, 2010 at 4:23pm

I was born with eczema from head to toe, when i hit puberty the sores started showing up on my scalp, elbows and knees, now at the age of 36 i would say 90% of my body has it; even my face. Some months are better than others, but i have had psoriasis for approx 24-25 years.

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Permalink Reply by angelique pascual on April 6, 2010 at 9:18am

they said the sun is not really damaging to the skin as you can find to other countries,..


christina boberg said:

So I probably sound stupid in asking this but what does going to the dead sea do? I don't get it. Is there something in the water that helps your skin?

serge said:

Hi, I got pso since I'm 11., am now 24. It's the general psoriasis but i'm about 85% covered. I go since 12 years now every year to the dead sea and coming every year back completely clear, but it comes back. Although no other treatment helped me in the past (and I done almost all of them general medecine and alternatif) I started now enbrel almost 3 months and there's no difference yet. With the years I started to accept my pso and that's what brought me peace, it's all about acceptance!!
Pso sufferers can live a normal life and do what others do, we just have to put some cream on the way ;-)

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