How long have you suffered from psoriasis?

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Permalink Reply by Wasim Naqvi on February 26, 2010 at 10:41am

Welcome penny, 28 british-2-dubain here. Penny i agree with u, the condition makes us stronger psychologically. It kinda adds confidence to our natural way of thinking and the sense of perfection and pursuing it idealistically fades and makes us a bunch of realists (to some extent). Unfortunately where it doesn't help is exposure and the freedom to do certain things simply because the fools of society view the extremity of our condition by showing disgust, fear and social disapproval. Like Dal Gordan says "We shouldn't give a crap" (not exactly in those words) and i agree!!

Penny Hall said:

Hi everyone...My name is Penny. I am 31 and I have had P since I was 14. I started getting symptoms when my dad was diagnosed with Cancer....three months later when he passed I was pretty much covered. My doctor diagnosed me with shingles, Limes disease, and my favorite "an extreme allergy to dust". Before my mom invested a boat load into buying vinyl comforters and dust free systems for the house she decided to take me to a dermotologist. I was diagnosed right away with P and have been on every drug and therapy since.
My family who was also into holistic therapy engouraged me to try different diets, creams, and accupunture. The accupuncture worked on my face (very painful procedure where you are stabbed about 50 times in an isolated area and then they suction the blood out and apply a cream)----it ended when he told me I would need to shave my head and live in DC with him for the summer for similiar therapy....needless to say it was a Hell no, I was 16, and long hair helped me hide.
I did well with light therapy until I started having side effects from the oxyloren. I had to have my nose carterized from all of the nose bleeds and I cannot drink Dr. Pepper to this day because thats what I drank when I took those pills....two nights a week I was throwing up everthing (at 17, it was also a great diet).
I missed half the semester of my senior year because the anxiety got so bad. I have been blessed with supportive friends and family, but it wasnt enough.
I have done methotrexate, Cyclosporine, and now Enbrel for about 4 years. I have been broken out for about a month now, and I have a dr's appt tomorrow. I am going to ask for Stelara. I dont know if you can become immune to Enbrel, or if it was my last batch of cortizone shots for my feet. Anyone who has gotten those damn shots know that they are freakin Chuck Norris or Rambo after they get them because you feel like no pain should exist (especiallly 45 times on the soles of your feet).
I have had some pretty dark moments. I almost feel like I am paying for something I have done in my past at times. I feel like I am the only one that has this because there is no one else in Hampton VA that has it that I have seen. I have a great friends and family, and feel truly blessed, but there are times where I feel like I dont belong anywhere. I was so happy when I found this site...and all of your experiences make me feel like I do have a home.
I wish much luck to all of you and I am sorry for rambling.....but remember even though this horrible disorder separates us from what we consider normal....it makes us the strong, beautiful people that others can only dream about. You cannot bottle what we have gone through, will go through, and will continue to face.....you have to be it.....and we are.

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Permalink Reply by Nagy Llászló on March 4, 2010 at 9:15am

Sziasztok Laci vagyok magyarországról. Tudna nekem valaki ajánlani valami jó kezelési modot a sorimra?

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Permalink Reply by Matt Vincent on March 8, 2010 at 6:57am

So after 10yrs of trying various meds and myths, for the last 3months i have been on a strict elimination diet wich involved lots of leafy greens, heaps of water and lots of sunshine. Added regular exercise (daily) and 1hr of "me" time (reading,movie etc). Its now 90% gone and fading. Ive tried things like this in the past with little improvement but this time enough was enough. I had a written daily plan to follow and stuck to it religiously. Saw no change for 1st 4 weeks wich was disheartning but then the scaling stopped, then patches started reducing in size and now just light red marks. Only use a basic moisturiser every now and a gain from being out in the sun. Ive lost 10kgs, feel great and am wearing shorts!! (this is the only forum that can appreciate something so trivial)

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Permalink Reply by Garry Leavy 1 day ago

Hey Matt,
Glad to hear about your success. Do you care to share what your daily diet/routine is?? Is it anything like dr. Pagano's regimen??
Thanks and good luck getting clear!!!

Matt Vincent said:

So after 10yrs of trying various meds and myths, for the last 3months i have been on a strict elimination diet wich involved lots of leafy greens, heaps of water and lots of sunshine. Added regular exercise (daily) and 1hr of "me" time (reading,movie etc). Its now 90% gone and fading. Ive tried things like this in the past with little improvement but this time enough was enough. I had a written daily plan to follow and stuck to it religiously. Saw no change for 1st 4 weeks wich was disheartning but then the scaling stopped, then patches started reducing in size and now just light red marks. Only use a basic moisturiser every now and a gain from being out in the sun. Ive lost 10kgs, feel great and am wearing shorts!! (this is the only forum that can appreciate something so trivial)

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Permalink Reply by rachel meyer 1 day ago

I was diagnosed with psoriasis @ 14. A world renown dermatologist told me, there is no cure for psoriasis, but going to the Dead Sea located in Israel, will prevent it from spreading and possibly remove whatever patches already exists. The reason for that is, the Dead Sea is located 360 deg below sea level, therefor the sun has no ultra voilent rays(allowing the person to safely sit out..).....so the sun actually cures my existing patches and prevents new ones. I have been going there since I am 14......over 15 yrs...and thankfully...it has yet to spread!!!! I jUSt sit out in the sun..tanning, literally all day for about 10 days....and that gets me through an entire yr!!! I meet people from all over the world there!!! It really works!!

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