I have been on stelera for a month

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Permalink Reply by julie on July 5, 2010 at 9:19am

Hi Pamela!
I am so happy for us!!! It is like a miracle ...I didn't think anything would work after Raptiva, but I too am wearing shorts and skirts again this summer! I have only had 2 shots and not due for the next shot til August. It is amazing!!!! I too fell very blessed.

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Permalink Reply by Pamela Crews on July 6, 2010 at 12:55am

Hi julie bantz, I'm glad to hear Stelara is working for you as well. I hope everyone else has the same blessings we have experinced. It's wonderful!!!!

julie bantz said:

Hi Pamela!
I am so happy for us!!! It is like a miracle ...I didn't think anything would work after Raptiva, but I too am wearing shorts and skirts again this summer! I have only had 2 shots and not due for the next shot til August. It is amazing!!!! I too fell very blessed.

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Permalink Reply by ELLEN SHAPPPE on July 17, 2010 at 4:43pm

HI THERE, I HAVE HAD TWO SHOTS AND MY STELERA HAS ALMOST COMPLETELY CLEARED UP. I GUESS I AM ONE OF THE LUCKY ONE AND ALSO THANKS TO MY DOCTOR THE INSURANCE COMPANY HAS COVERED ME EXCEPT FOR A SMALL CO-PAY. MY ONLY SIDE EFFECT APPEARS TO "NAUSEA". I WAS WONDERING IF YOU OR ANY ONE IN THE ORIGINAL GROUP OR THAT YOU ARE AWARE OF, HAS HAD THIS SIDE EFFECT? IT REALLY ONLY STARTED AFTER THE 2ND SHOT. I HAVE HAD PSORIASIS FOR OVER 25 YEARS. THIS TRULY IS A MIRACLE DRUG.
ELLEN WHITNEY
Vonne Taylor said:

Hello everybody, new to the group here. I too have just had my first shot off Stelara. BUT I participated in the original study for this drug and let me tell you it works! Everyone in my study group got better, and I mean absolutely everyone! Originally it was just ONE shot, but I believe they reformulated it to make it more acceptable to insurance companies and so it would be available to more people. Had they left it at one shot the cost would have been so astronomical that only the very wealthy would be able to afford it.

I have been waiting 5 years for this drug to be approved and I am so thrilled that it is available and that I can finally use it as a regular treatment. Stelara works at a different pace for everyone, so just be patient and keep the faith. Some people will see improvement immediately, some may see it much later, but it DOES work.

Regarding the uninsured, please go to www.stelarainfo.com, there is a link there for assistance for the uninsured or under insured or those on Medicaid, etc. Hope this helps!

Best of luck to everyone1

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Permalink Reply by Sara Johantgen on July 19, 2010 at 1:45am

I had my second shot of Stelara on July 9. So far I have had only a little success. I have psoriasis on my hands and it has helped with the inflammation, but not too much for the flaking/peeling/cracking. My husband was the one who noticed my hands weren't hot - usually they are burning up and puffy. Wondering if the Stelara is going to work "from the inside out" instead of the usual of applying stuff to the outside. I haven't noticed much improvement in the skin of my hands or on my scalp or other areas. I really hope I see more improvement before my next shot in October. I had a lot of success with Soriatane, but I don't like the side effects - raised my cholesterol and lowered my white blood count. I haven't noticed any side effects with the Stelara yet that I can pinpoint and my blood work is all good. If I could at least get my scalp cleared up I would be ecstatic!

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Permalink Reply by Rhogna Ann Pool on July 19, 2010 at 8:08pm

Thank you so much for the Website and the information. My husband has had psoriasis for many years, then a couple of years ago our middle son started having breakouts. He was about 20. It was so traumatic for me I can't even imagine what it did to him. He is such a good looking young man, I just hurt to think he probably inherited this from his dad and will have to struggle with this for the rest of his life. He doesn't have any insurance so I am anxious to check out the Website you gave. Thanks again!


Vonne Taylor said:

Hello everybody, new to the group here. I too have just had my first shot off Stelara. BUT I participated in the original study for this drug and let me tell you it works! Everyone in my study group got better, and I mean absolutely everyone! Originally it was just ONE shot, but I believe they reformulated it to make it more acceptable to insurance companies and so it would be available to more people. Had they left it at one shot the cost would have been so astronomical that only the very wealthy would be able to afford it.

I have been waiting 5 years for this drug to be approved and I am so thrilled that it is available and that I can finally use it as a regular treatment. Stelara works at a different pace for everyone, so just be patient and keep the faith. Some people will see improvement immediately, some may see it much later, but it DOES work.

Regarding the uninsured, please go to www.stelarainfo.com, there is a link there for assistance for the uninsured or under insured or those on Medicaid, etc. Hope this helps!

Best of luck to everyone1

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Permalink Reply by CJC on July 19, 2010 at 11:11pm

I am on a related drug for rheumatoid arthritis, it's taken me 3 yrs to get stable on the meds, and had to look at differing dosing schedules. The improvement with these types of drugs is often slow & incremental, so give it a chance, also, for those who have high co-pays, some companies offer to cover the co-pays if your insurance covers the main portion. The drugs are so expensive because they are proteins that are created by recombinant DNA processes, so not just by knocking a few chemicals together, not to mention research and development. Good luck.

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Permalink Reply by Chuck on July 20, 2010 at 12:51am

They're also expensive because companies want to make a lot of money.

CJC said:

The drugs are so expensive because they are proteins that are created by recombinant DNA processes, so not just by knocking a few chemicals together, not to mention research and development. Good luck.

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Permalink Reply by CJC on July 20, 2010 at 2:39am

Just trying to point out that there are some legitimate costs beyond greed.

Chuck said:

They're also expensive because companies want to make a lot of money.

CJC said:

The drugs are so expensive because they are proteins that are created by recombinant DNA processes, so not just by knocking a few chemicals together, not to mention research and development. Good luck.

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Permalink Reply by Meg Pugh on July 20, 2010 at 4:29pm

I have take 2 injections of stelera. I haven't seen much difference but i have puscular psoriasis on the bottoms of my feet. I also took the second injection 2 wks early. I hope with all my heart to see some improvement. My feet are so painful and itchy. I have tried everything too! The drug company actually paid for mine cause my insurance wouldn't cover the whole bill. It's crazy expensive!

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Permalink Reply by Martha Garner on August 19, 2010 at 2:23pm

I am on the study for Stelara. I love it. I have been on it for 4 years and have been 100% clear for the 4 years. My study ends in October and I will be able to go on my own. I have never felt better in my life.. The aches are gone and I can wear shorts and sleevless shirts without the staring.

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