Psoriasis
Hi,
I have psoriasis over 90% of my body. I am getting my first shot of Stelara tomorrow 1/4/10. I have tried Enbrel and it only worked for about 3 weeks. I tried Humeria(sp)? and after the 2nd shot went totally blind for about 1 minute twice during a given week. My doctor called the company and they told him that I was a 1/2 a person in 100,000 that that could happen to and my Dr. wanted me to take the third shot, but I refused. I was fortunate to be at home when I went blind both times. I can't imagine going blind while driving the car. I have also been on Remicade, cyclosporin, methotrexate, and Soriatane, nothing helped.
I have tried going the homeopathic way. It did work after having psoriasis for 15 years. That Dr. actually had me clear except for a couple of spots. After being cleared for 5 months, I had a hot water heater fall on me in a store. ( At this same time, I was caring for my mom in my home and she was 93 years old.) Within 2 weeks, the psoriasis started on my legs and spread quickly. I then tried accupuncture with a Chinese doctor and that did not give me any relief. My skin itches, burns and hurts day and night. Stelara is my only hope at this point.
Jane
I have psoriasis over 90% of my body. I am getting my first shot of Stelara tomorrow 1/4/10. I have tried Enbrel and it only worked for about 3 weeks. I tried Humeria(sp)? and after the 2nd shot went totally blind for about 1 minute twice during a given week. My doctor called the company and they told him that I was a 1/2 a person in 100,000 that that could happen to and my Dr. wanted me to take the third shot, but I refused. I was fortunate to be at home when I went blind both times. I can't imagine going blind while driving the car. I have also been on Remicade, cyclosporin, methotrexate, and Soriatane, nothing helped.
I have tried going the homeopathic way. It did work after having psoriasis for 15 years. That Dr. actually had me clear except for a couple of spots. After being cleared for 5 months, I had a hot water heater fall on me in a store. ( At this same time, I was caring for my mom in my home and she was 93 years old.) Within 2 weeks, the psoriasis started on my legs and spread quickly. I then tried accupuncture with a Chinese doctor and that did not give me any relief. My skin itches, burns and hurts day and night. Stelara is my only hope at this point.
Jane
Views: 41
Replies to This Discussion
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Permalink Reply by Jane Nastasi on -
Hi Bill,
I hope that Stellara works for you as it did me. I received 2 shots and everything was gone. Let me know how you are doing. I really didn't clear up totally until after the 2nd shot. Jane
Bill Ritter said:Hi Jane,
I just wanted to let you know you have a fellow spirit here. I too was on the Enbrel for about a year. It worked great for me, but another infection caused me to stop and it came back in spades. When I got back on it after about three months, it worked for about three months more and then stopped.
Since then I have been doing home remedies but mostly lots and lots of baby oil and seculsion therapy with vinyl gloves, plastic wrap and such. Tomorrow, (7/22/10) I am going for my first shot of Stelara. Since the lesser biologic Enbrel worked for a short time with me also, I am praying for all of us that the Stelara will be better since it targets specific protiens. It seems a better shot since they are zeroing in on the causes.
If this doesnt work for me, my doctor told me the only shot for me is to either enter into university studies and be a guinea pig or to find something that "works for me" on my own.
90% covered for 35 years but still kicking! Wish me luck as I wish you! Keep me posted how you are doing!
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Permalink Reply by Ken Connolly on
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Hi
I was and still am testing Stelara for the Canadian market......I cannot praise this product enough.....85 to 90% of my body was covered with pssoriasis when I started and within 2 months it was cleared....The best part is it stayed clear......Ive been testing it for over 5 years.
Jane Nastasi said:Hi Bill,
I hope that Stellara works for you as it did me. I received 2 shots and everything was gone. Let me know how you are doing. I really didn't clear up totally until after the 2nd shot. Jane
Bill Ritter said:Hi Jane,
I just wanted to let you know you have a fellow spirit here. I too was on the Enbrel for about a year. It worked great for me, but another infection caused me to stop and it came back in spades. When I got back on it after about three months, it worked for about three months more and then stopped.
Since then I have been doing home remedies but mostly lots and lots of baby oil and seculsion therapy with vinyl gloves, plastic wrap and such. Tomorrow, (7/22/10) I am going for my first shot of Stelara. Since the lesser biologic Enbrel worked for a short time with me also, I am praying for all of us that the Stelara will be better since it targets specific protiens. It seems a better shot since they are zeroing in on the causes.
If this doesnt work for me, my doctor told me the only shot for me is to either enter into university studies and be a guinea pig or to find something that "works for me" on my own.
90% covered for 35 years but still kicking! Wish me luck as I wish you! Keep me posted how you are doing!
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