Pustular psoriasis, anyone?
So while waiting for Stelara, my doctors decided to give me simponi and my luck would have it...I developed pustular psoriasis!! And now it has taken over my life!!! I have had psoriasis for a while but never let it take over my life has this new type has!!! I am too depressed to even do anything now, and my life is in pause!!
So does anyone else here have it, and know what helps? I'm on methotrexate only at this moment and waiting for stelara. But my mom is against it because of my reaction with simponi!
Nothing helps me. So does anyone else know what might just help a little bit at least?
Thanks everyone!!! and be well!
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Replies to This Discussion
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Permalink Reply by fem on -
hey girl. i absolutely relate! i get outbreaks on the palms of my hands... it's a real treat. i'm bad though and i pop them with safety pins... but you're totally NOT supposed to do that, but it was the only thing that would stop it from itching! it's gotten so bad i couldnt hold a pen to write- i've had to call out of work before b/c i couldnt hold the wheel to drive, but luckly i've only had three bad outbreaks- granted it lasted several months at a time. the first time took a while to diagnose b/c i thought i was having an allergic reaction to something b/c it was only on my palms.
my doctor gave me an antiinflamatory/antibiotic and it seemed to knock it right out. i havent had a bad outbreak since taking those pills (only one set, not ongoing) i still have a couple of bumps flare up now and then, but they usually seem to go away by themselves. i know not having the name doesnt help, but i will have it for you by monday. i just wanted to respond b/c i havent met many people with this type and i was excited (does that sound sick? :) ) to reply.
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Permalink Reply by Afifa Fatema on -
Not at all!!! I am excited too!! Finaaallyy, someone who understands exactly how I feel. So...doryx is the name of the drug?? I will for sure call my doctor ASAP on monday!!! yeah when it appeared on my skin...the doctors thought I had an infection...then they figured it out after few days that its pustular psoriasis. BUT its been itching SOOOO MUCH for last few days...umm and my psa is acting up really bad...so i took a lot of drugs to be just able to shut my eyes...i have been going to sleep at 10:30 in the morning. :-( i think i m getting more stressed out from being home for so long and its not going any where. i m still waiting for stelara. but if the drug u told me works i wont have to go on to stelara. Frankly, i am really tired of shots, infusions and just drugs!!!
fem said:DORYX
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Permalink Reply by fem on
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let me know how it turns out. i hope it works! hang in there!!!!!!!!
Afifa Fatema said:Not at all!!! I am excited too!! Finaaallyy, someone who understands exactly how I feel. So...doryx is the name of the drug?? I will for sure call my doctor ASAP on monday!!! yeah when it appeared on my skin...the doctors thought I had an infection...then they figured it out after few days that its pustular psoriasis. BUT its been itching SOOOO MUCH for last few days...umm and my psa is acting up really bad...so i took a lot of drugs to be just able to shut my eyes...i have been going to sleep at 10:30 in the morning. :-( i think i m getting more stressed out from being home for so long and its not going any where. i m still waiting for stelara. but if the drug u told me works i wont have to go on to stelara. Frankly, i am really tired of shots, infusions and just drugs!!!
fem said:DORYX
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Permalink Reply by bonnie webb on -
Hi!! I to suffer from this nasty disease. I Now have the arthritis that goes with it. I am so scared of the side effects of the meds out there that I don't know what to do. Please help me.
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Permalink Reply by Darren Peterson on
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I have had pustular psoriasis for over 5 years. It started when I became severly depressed. I have tried methotrexate, sortiane, several topicals (Donovex, Clobetosol, Vectical, Tazorac, etc). I also had tried PUVA. Unfortunately, nothing has worked. I read a blog on patients taking embrel and how some patients taking the shots had the worst flare then ever. I was reluctant to try the Embrel, but I took the shots anyway. I ended up having the worst flare ever. I stopped the shots immediately, and my feet and hands have never been the same. I have inflammation and reddness on my feet which was never there before the shots. I only had pustules before the shots. I would like to bring this to peoples attention that embrel can cause this reaction. I wish I had listened to the peoples response about embrel and worsening of the PPP.
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Permalink Reply by Karla Barnes on -
Yes it sucks when u have this crap... I have been living with it since i was 4 and im 22 now.... As i always say just keep living life and keep going dont let this crappy disease get ahold of ur life..... Dont worrie about the side effects... We will all die one day from the side effects or ffrom not taken any of the meds and our disorder getting worse and crap like that or as a coworker told me we all are going to die one day..... I say enjoy life as much as u can and keep living.... I got told friday my liver is getting beat up by the med i been on the longest...
bonnie webb said:Hi!! I to suffer from this nasty disease. I Now have the arthritis that goes with it. I am so scared of the side effects of the meds out there that I don't know what to do. Please help me.
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