Stelara

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Permalink Reply by Rhonda on September 28, 2009 at 2:38pm

I talked to my derm already also as I was just waiting for FDA approval to get on it. I have heard WONDERFUL things about this new drug both here and in the UK from people that were in it's trial so my figers are crossed...

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Permalink Reply by Arlene Vickrey on October 4, 2009 at 6:47am

I have never headr of Stelera. I had great results with Humera and cleared completely for a year, and then the drug just stopped working and my psoriasis came back. My doctor tells me that sometimes this happens with the biologics, they just "stop working". She is going to switch me to Enbrel.

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Permalink Reply by hope on October 7, 2009 at 9:01am

Hi Kristine ... I also rec'vd NPF email on Stelera and want to start asap. I am 90 % covered from scalp to feet with psoriasis and, also have psoriatic arthitis. I have been on pills , home injections, iv's , biologicals , topical creams ... same treatments for many people with these diseases. These treatments help but then they stop working . Let me know when you start Stelera.

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Permalink Reply by Bob Van Houten on November 2, 2009 at 12:56am

Anyone on stelera yet. The drug has been approved and no one has commented, for awhile. I am on Enbrel and getting ready for a switch. My Derm. wants to move on it, but the PA doctor is reserved on it, as to it being so new. Also it is supposedly only FDA approved for P, not PA. But the FDA had a reverse with Enbrel when it came out, so keep that in mind. Any new thoughts or info, would be appreciated. Stelera seems to be a move in the right direction, targeting the specific TNF #, versus the whole spectrum, if I am understanding it properly.

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Permalink Reply by Ashley K on November 2, 2009 at 9:39am

I have a doctors appointment next week in hopes of starting this medication. I will definitely keep everyone up to date if my insurance will cover this medication for me. I need relief :(

Bob Van Houten said:

Anyone on stelera yet. The drug has been approved and no one has commented, for awhile. I am on Enbrel and getting ready for a switch. My Derm. wants to move on it, but the PA doctor is reserved on it, as to it being so new. Also it is supposedly only FDA approved for P, not PA. But the FDA had a reverse with Enbrel when it came out, so keep that in mind. Any new thoughts or info, would be appreciated. Stelera seems to be a move in the right direction, targeting the specific TNF #, versus the whole spectrum, if I am understanding it properly.

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Permalink Reply by Cherie B. Baker on November 2, 2009 at 12:21pm

Hi Kristine,
I went off Humira because it wasn't working. Put myself on Stelara and had the first shot, nothing yet, no results. Skin has rebounded from Humira and am about 85% covered. I have heard that it is accumulative (Stelara) and doesn't start working for approximately 12 weeks. It took me a good 4 weeks with insurance etc. to even get the script. I don't know how long you have to be off Humira before starting the new drug but because I was their first patient they (doctors) were not very well informed. Bottom line........Good Luck!!

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Permalink Reply by Cherie B. Baker on November 2, 2009 at 12:22pm

I started it a week ago, 90% covered due to rebound from Humira. Nothing yet, no results. Guess it takes about 12 weeks before anything happens.............dunno, not happy but looking toward the future?

Bob Van Houten said:

Anyone on stelera yet. The drug has been approved and no one has commented, for awhile. I am on Enbrel and getting ready for a switch. My Derm. wants to move on it, but the PA doctor is reserved on it, as to it being so new. Also it is supposedly only FDA approved for P, not PA. But the FDA had a reverse with Enbrel when it came out, so keep that in mind. Any new thoughts or info, would be appreciated. Stelera seems to be a move in the right direction, targeting the specific TNF #, versus the whole spectrum, if I am understanding it properly.

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Permalink Reply by Cherie B. Baker on November 2, 2009 at 12:27pm

Started Stelara last week, got the first shot after waiting for doctors and insurance for about a month. I am still 90% covered (rebound fom humira) Know that blood work is requiered, an updated TB test and insurance approval.

hope said:

Hi Kristine ... I also rec'vd NPF email on Stelera and want to start asap. I am 90 % covered from scalp to feet with psoriasis and, also have psoriatic arthitis. I have been on pills , home injections, iv's , biologicals , topical creams ... same treatments for many people with these diseases. These treatments help but then they stop working . Let me know when you start Stelera.

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Permalink Reply by Kristine Bliss on November 2, 2009 at 5:26pm

Well, I went to my derm last week and she wants me to wait a year to start Stelera because it is so new, she wants to know about any side effects,ect. So I am still on Humira and she added some topical things for me.

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Permalink Reply by Ryan Lohmann on November 4, 2009 at 11:15pm

Where do you recieve the shots for this do most derms have them or is it outsourced?

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Permalink Reply by Robert Wolfe on November 5, 2009 at 11:57am

I have found this Blog that is all about Stelera and has been a very big help in obtaining information about it and stories from people who have been on it during its trial found nothing but good things on this blog

http://www.everydayhealth.com/blog/itch-to-beat-psoriasis/stelarano...

check it out and learn a lot about Stelera my wife was approved for it yesterday and hopfully will get her shot in the Dr office sometime next week after it comes in was a very long process for getting it
appoved to becovered by insurance

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Permalink Reply by Cherie B. Baker on November 5, 2009 at 1:10pm

Thanks Rob. Good luck to your wife. I have noticed that the plaques have become thinner and are starting to divide.........Yipeeeeeeeeeeee, think it's working.

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