Stelara
I just got an email that Stelara has been approved by the FDA, fully. Has anyone been able to use it yet? I am excited about this because I am on Humira now and it has stopped clearing me, it is now just maintaining what it has cleared and keeping the rest under control. I see my Derm next month and hope to be put on it.
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Replies to This Discussion
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Permalink Reply by Brittany Rowley on -
I notices that I was peeling less and the inflammation had got down a bit after a month. I got the first shot and then a month later got a second injection and now I am getting a shot every three months. I started noticing that my scalp cleared up and my torso and arms were almost gone about a month after my second injection. My doctor said stelara is insidious and that you will slowly see changes, less redness, less scaling, smaller patches. I will get my third injection in March. I weigh about 170 (5'9" I don't know if that makes a difference) and I'm not sure what the dosage is but I will email my doc today and find out for you. Have you started it yet? How long has it been?
Chuck Little said:My doctor would love to know how long was it before you saw results and, I hope you don't mind, about how much you weigh and the dosage of your shots? I'm hoping I get the same results!
Brittany Rowley said:I have been on Stelara now for 2 1/2 months and it is amazing! I was in so much pain in November that I took sleeping pills whenever I could to try to sleep through the pain and now I am almost completely clear and have no pain at all. I've experienced minimal side effects (occasional minor headaches that go away with tylenol and some nausea). I absolutely love it and recommend it highly! It is also great beacause I have a family history of MS so am unable to use Humera and other biologics but Stelara is safe for me to use. It is insanely epensive right now but my insurance covers most of it. I hope that was helpful.
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Permalink Reply by Brittany Rowley on
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Richard,
I was on cyclosporine for a few months and that cleared it up really fast, but now I am on Stelara and I know it seems like it isn't working well at first but I have been on it since November and it is a million times better now. The first couple months it works pretty slow but just hang in there and give it a couple more months and hopefully you will seem a bigger improvement.
Richard S. Washburn said:To all concerned:
As i stated in a previous post I had my first shot of Stelara on Jan. 08, 2010 and have received my second shot on Feb. 05, this month. I weigh 255 and was given the 90 ml shots both times. As stated in my previous post I have been on Enbrel, Humira, Remicade, and now the Stelara. The other biologics stopped doing there thing after a while of being on them. I am not a candidate for methotrexate, (may not be spelled right) because I have had hepatitis C and B. One of the main problems with the biologics loosing there effectiveness is because your own body starts to make antibodies against the medication. To much detail to go into it all, but in layman's terms it just stops working period. Also the starting and stopping of this medication doesn't help either. This can be attributed to insurance companies denying or dragging their feet when giving their approval. Now back to the Stelara, I have seen minimal results so far. It has not "cleared" me as the other biologic's did. It has however thinned the scaling, stopped most of the itch, and taken the redness and soreness out turning the lesions a purpleish color. I am still remaining hopeful that it will clear over time. One of the problems with Stelara is the lack of clinical trials, by that I mean not enough studies and in my case no studies for someone who has had Hep. I know that it is hard for us all to keep our chin up during all this, but sometimes it gets very hard to do. I can relate to the person on here that was taking sleeping pills to just make the time and pain of PA pass. The depression that this disease creates is cruel. We all have to stick together and tell our government to find us a cure without the cost. It is no different than someone having cancer in my opinion. Sickness and disease go hand and hand. Thanks for reading.
Richard S. Washburn
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Permalink Reply by Chuck Little on -
I've been on it since Dec 28th and had my second injection on Jan 28th so hopefully I'll be seeing more results!
Brittany Rowley said:I notices that I was peeling less and the inflammation had got down a bit after a month. I got the first shot and then a month later got a second injection and now I am getting a shot every three months. I started noticing that my scalp cleared up and my torso and arms were almost gone about a month after my second injection. My doctor said stelara is insidious and that you will slowly see changes, less redness, less scaling, smaller patches. I will get my third injection in March. I weigh about 170 (5'9" I don't know if that makes a difference) and I'm not sure what the dosage is but I will email my doc today and find out for you. Have you started it yet? How long has it been?
Chuck Little said:My doctor would love to know how long was it before you saw results and, I hope you don't mind, about how much you weigh and the dosage of your shots? I'm hoping I get the same results!
Brittany Rowley said:I have been on Stelara now for 2 1/2 months and it is amazing! I was in so much pain in November that I took sleeping pills whenever I could to try to sleep through the pain and now I am almost completely clear and have no pain at all. I've experienced minimal side effects (occasional minor headaches that go away with tylenol and some nausea). I absolutely love it and recommend it highly! It is also great beacause I have a family history of MS so am unable to use Humera and other biologics but Stelara is safe for me to use. It is insanely epensive right now but my insurance covers most of it. I hope that was helpful.
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Permalink Reply by Stephanie H MacNeill on
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I just started Stelera last month and found out today that the manufactorer is no longer producing the product. Does anyone know why? I am trying to reach my Doctor to find out and he is out until later today. I don't even think he knows why.
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Permalink Reply by Psoriasis Cure Now on -
Your information is mistaken. Call your doctor's office, and the nurse should be able to assist you.
Stephanie H MacNeill said:I just started Stelera last month and found out today that the manufactorer is no longer producing the product. Does anyone know why? I am trying to reach my Doctor to find out and he is out until later today. I don't even think he knows why.
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Permalink Reply by Deana Watson on -
They are still manufacturing it. Just not in the vials. It will now come in prefilled syringes. I get my next shot tomorrow. Hope this helps. I just talked to the specialty pharmacy.
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Permalink Reply by Jean Nissen on
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I have Psoriatic Arthritis; was on Rheumatoid for sevenyears until my system rejected it. My doctor mentioned Enbrel to me but it is a Prescription Drug for Shots twice weekly at a cost of $2000 per month. Even with Medicare RX MD (which only pays a very small amount) I cannot afford it and besides it has many of the same side effects that Remicade has. My son told me about Selera so went on line to find out about it. I still haven't gotten any information that I can use such as: what is it and how much does it cost? I am interested in the medication but need to know some facts about it before I talk to my Rheumatologist about it.
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Permalink Reply by Brittany Rowley on
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Hey everyone! I just wanted to give an update on the Stelara injections. It has been four months since my first shot and I am going to get my third in a week and I am almost completely clear! In Novemer I had it nearly covering both my legs on my back stomach arms scalp even my privates and now you can't even tell I had it! I have a couple tiny spots on my chest but other than that it is gone! I have had no side effects and am really happy with this drug overall.
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Permalink Reply by Kristine Bliss on -
That is amazing! Thanks so much for the update, I can't wait to start it! I am so happy for you!!!!
Brittany Rowley said:Hey everyone! I just wanted to give an update on the Stelara injections. It has been four months since my first shot and I am going to get my third in a week and I am almost completely clear! In Novemer I had it nearly covering both my legs on my back stomach arms scalp even my privates and now you can't even tell I had it! I have a couple tiny spots on my chest but other than that it is gone! I have had no side effects and am really happy with this drug overall.
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Permalink Reply by SHARON YATES on
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THAT IS GREAT TO HEAR, CONGRATULATIONS ON YOUR SUCCESS. I HAVE BEEN BATTLING PSORIASIS FOR 4 YEARS WITH LITTLE RESULT FROM THE CREAMS, TANNING, ECT THAT I HAVE BEEN ON. TODAY I SAW MY DERMATOLAGIST,HE IS GOING TO PUT ME ON STELERO INJECTONS. I JUST HAVE TO WAIT FOR AN APPROVAL FROM MY INSURANCE COMPANY AND ITS A GO! I AM SOOOO EXCITED TO GET THIS TREATMENT STARTED, AND HOPEFULLY HAVE THE SAME GREAT RESULTS AS MANY OTHER SUFFERES. AGAIN CONGRATS!
A Trader said:Thanks! Just saw this after asking how you were doing---this gives hope:)
Brittany Rowley said:Hey everyone! I just wanted to give an update on the Stelara injections. It has been four months since my first shot and I am going to get my third in a week and I am almost completely clear! In Novemer I had it nearly covering both my legs on my back stomach arms scalp even my privates and now you can't even tell I had it! I have a couple tiny spots on my chest but other than that it is gone! I have had no side effects and am really happy with this drug overall.
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Permalink Reply by Erika Evans on
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Hi I'm so glad I found this place to be able to tell people my story on this disease. I sarted having pain in my feet ,I worked as a C.N.A. so I was on my feet alot, I thought it was being on my feet that made them hurt. I smashed my hand at work and three weeks later my right hand swelled up and very painful, the pain radiated up to my shoulders. I went to the Drs. and he put me on vicoden for the pain which really didn't work, and sent me to a Rhumatoligist (not sure of the spelling). He did blood work and it came back as a very low positive for RA, gave me injections for the pain, which didn't help either. This went on and on every six months of blood work, thought it was all in my head. Then I stared breaking out with psorisis, "doc said oh we now know what you have.psoriatic artheritis, put me on Remicade after my second infusion I broke out with hives and welts lasting for a week and a half had to go to the ER and get a shot of epinephren. I wasn't on anything after that for four months I was miserable, so we decided on simponi, couldn't breath,had a very sore throat,didn't do anything for the itching and swelling painful joints. Now I'm on Humira I was on it once a week, well I was getting infections one after the other. Been in the ER twice for the infections,I'm so discouraged, he has me on the Humira every other week and I'm misrable. When I was on it every week it worked like a dream except for the infections.He gave me a pamphlet on Salera , and ask me to decide if I want to be on this medication, but I would have to go to the dermatoligist, so I'm glad I found you guys and it will give me a heads up on it , so when I go to the Dr's appointment I can tell him what I found on the web I hope this every two weeks is going to work with this Humira, but I can already feel that it's not and I don't know if I want to be on the Salera. I'm also on Oxycontin,Vicoden and Ativan. For pain and anxiety I said to myself WHY ME. I've always been healthy and active didn't take so much as an aspirin, Tylenol etc. I thank you so much for your comments and your stories I hope you all get the relief and a happy good life I'm sure going to try. I've been depressed for so long ,and I'm tired of feeling like that so I've got pull myself up from the bootstrap as we all have to and take charge of this disease. I thank the Lord for the help I get with meds. I'm disabled and on medicare, I get help and I mean alot of help with my meds.I hope all those that need help can find it. There's a place I was going to for help with my oxycotin called Perdue PAP. It's Perscription Assitstance, I don't have the number ,but you may be able to look it up on the web. Good luck to you all, I couldn't believe how much my Humira was $4000.00 it's was mind blowing I had no idea, so I can imagine what all the rest of it must be. I read some of what people have to pay that's ludicris. These drug companies are a joke and robbing people leagally it's a shame. Sorry I wrote so long of a reply and I hope it gets to you all, good luck very good luck on trying to find relief from this little known disease, but it's starting to get notice thank heavens god-bye and thanks again, Erika Evans
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Permalink Reply by Joni Mauskemo on
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My daughter has been fighting with psoriasis since she was 14 yrs old and now she is totally covered from head to toe. She has tried many creams and other shots now she is trying Stelara and she is going to get her 3rd dose pretty soon but wondering if she shouls as she is suffering from side effects that she don't like and her skin has not cleared yet. I hate seeing my daughter suffer and she cries because of the pain and she does not want to go out because people just stare and make faces because of her skin. She is now 24 and still no luck with a cure.....please send me some more info on stelara!! Thanks......
Erika Evans said:Hi I'm so glad I found this place to be able to tell people my story on this disease. I sarted having pain in my feet ,I worked as a C.N.A. so I was on my feet alot, I thought it was being on my feet that made them hurt. I smashed my hand at work and three weeks later my right hand swelled up and very painful, the pain radiated up to my shoulders. I went to the Drs. and he put me on vicoden for the pain which really didn't work, and sent me to a Rhumatoligist (not sure of the spelling). He did blood work and it came back as a very low positive for RA, gave me injections for the pain, which didn't help either. This went on and on every six months of blood work, thought it was all in my head. Then I stared breaking out with psorisis, "doc said oh we now know what you have.psoriatic artheritis, put me on Remicade after my second infusion I broke out with hives and welts lasting for a week and a half had to go to the ER and get a shot of epinephren. I wasn't on anything after that for four months I was miserable, so we decided on simponi, couldn't breath,had a very sore throat,didn't do anything for the itching and swelling painful joints. Now I'm on Humira I was on it once a week, well I was getting infections one after the other. Been in the ER twice for the infections,I'm so discouraged, he has me on the Humira every other week and I'm misrable. When I was on it every week it worked like a dream except for the infections.He gave me a pamphlet on Salera , and ask me to decide if I want to be on this medication, but I would have to go to the dermatoligist, so I'm glad I found you guys and it will give me a heads up on it , so when I go to the Dr's appointment I can tell him what I found on the web I hope this every two weeks is going to work with this Humira, but I can already feel that it's not and I don't know if I want to be on the Salera. I'm also on Oxycontin,Vicoden and Ativan. For pain and anxiety I said to myself WHY ME. I've always been healthy and active didn't take so much as an aspirin, Tylenol etc. I thank you so much for your comments and your stories I hope you all get the relief and a happy good life I'm sure going to try. I've been depressed for so long ,and I'm tired of feeling like that so I've got pull myself up from the bootstrap as we all have to and take charge of this disease. I thank the Lord for the help I get with meds. I'm disabled and on medicare, I get help and I mean alot of help with my meds.I hope all those that need help can find it. There's a place I was going to for help with my oxycotin called Perdue PAP. It's Perscription Assitstance, I don't have the number ,but you may be able to look it up on the web. Good luck to you all, I couldn't believe how much my Humira was $4000.00 it's was mind blowing I had no idea, so I can imagine what all the rest of it must be. I read some of what people have to pay that's ludicris. These drug companies are a joke and robbing people leagally it's a shame. Sorry I wrote so long of a reply and I hope it gets to you all, good luck very good luck on trying to find relief from this little known disease, but it's starting to get notice thank heavens god-bye and thanks again, Erika Evans
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