Stelara

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Permalink Reply by Marie Fisher on November 18, 2010 at 7:57pm

No input from anyone on Stelara? Any information would be greatly appreciated.

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Permalink Reply by Marie Fisher on February 28, 2011 at 7:28pm

Vinnie.. I don't have P. My adult son does. I'm on this site for encouragement and any ideas that will benefit my son.

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Permalink Reply by Deea Pyke on April 13, 2011 at 11:18am

Yay Mom.  Thank you for supporting your adult son. I appreciate the support that I am fortunate enough to receive form my own family.  Loving community is a golden key. I am new to this site.  How is your son doing?

I have gratitude for being given the opportunity to begin biologics (Humira) next week.  You may find it interesting that the onset of my PA happened before the recommendation for Humira.  Infinite unknown possibilities exist for the arising of some future condition as a fact of my genetics in combination with my environment.  In the past I was someone who would have declared that treatments were causal in the worsening of my next flare up etc. I didn't want to accept the reality of it or the likelihood of it progressing into perhaps a more ominous fate.  I wanted to blame something or someone for the pain of it all. I was even blaming myself for not having figured out the "cure". Blame and shame became my game.

I have decided to shift my expectation for a "cure" and am now choosing to consciously receive treatments/advice that may help soften the impact of the symptoms.  While my mind understood the words, uttered almost 20 years ago, I had not yet fully accepted the "incurable" status of Psoriasis and it's associated conditions. I decide each day now not to allow fear to inform my decisions about treatment.

This seems to offer me greater possibilities for a better quality of experience Here and Now. 

I appreciate all of the time and energy so many brilliant people have put into the research and development of these advanced technology to support us on this journey. 

I do what I can each day to focus on finding ways to support myself and others in gaining the best available health and wellness possible.  

Hope this helps <3

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Permalink Reply by erika on May 18, 2011 at 5:30pm

The medication that i used has no known side effects and it gave me great results. Try checking out The American Institute of Advanced Medicine.

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Permalink Reply by Janet Lancaster on June 16, 2011 at 12:55am

I have not heard this specifically about Stelara. However, I know with calcium bentonite clay - a natural detoxifier - the conditions it addresses *can* initially worsen before getting better. The clay is concentrating the toxins prior to removal either through the skin or digestion/elimination. However, the worsening shouldn't last more than several days. Hope this helps.

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Permalink Reply by Soccer Jim on October 26, 2011 at 1:45pm

I started Stelara earlier this year.  Its my first time with a biologic, before that I've done creams, and UV light treatments.  While I didn't have any worsening of my psoriasis, the effects for me isn't what I was hoping for.

 

While it has been overall beneficial, my patches are not as heavily plagued, and the skin is not as irritated.  I have only seen some complete clearness in certain areas of my body after getting my shots, such as my hands and feet.  My torso and legs still have a ways to go.  I've had 3 injections thus far, my 4th is coming up in December.  I started using my Dovonex again to help with the in between time or to further help my skin when I get the next injection.

 

What I am really hoping is they approve more frequency in the dosages.  I am ont the 90ML shot, and from what I have seen in my own skin is that after your first shot you wait 1 month, then get your 2nd, then wait 3 months, and get a shot every 3 months after that.  I would like to see is if that can be reduced to 2 months.  Because after a month the areas that were clear or near clear started coming back, and I got 2 more months before my next shot now...so it worries me a little bit.

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Permalink Reply by Dave on October 28, 2011 at 7:01pm

Marie,

I have just had my first Stelara injection 3 days ago, so far only side effect was an increase in energy in the first 24 hours.

 

Dave

 

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Permalink Reply by Jeff on November 15, 2011 at 6:06am

I have had P with PA for over 20 years. I treated with Enbrel for 7 years with great response for my PA, but limited results for my P. 
I recently switched to Stelara hoping to get better skin response.  It has now been about 9 month on the stelara and my PA is worsening.
I have been working with my Rhuem, but now I am on 400 MG of Celebrex along with stelara and I am still in more pain than I was before.

This week my Derm and I are trying a treatment where I take my stelara every 8 weeks instead of 12.
My Derm says he has 4 patients that react well to that dose. 
The problem is that it takes 8 weeks to take my next shot to even see if it is working.

I'll keep everyone posted.  These forums aren't very active, lets check in more if only to get the forum moving.

Good luck with your son!

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Permalink Reply by Soccer Jim on November 15, 2011 at 12:55pm

Good Luck with the PA Jeff, that's the downside with Stelara it doesn't help out the PA side of things.  Considering the types of activities that I enjoy I feel very lucky not to have PA (soccer, downhill skiing).  Though I am worrisome with finally getting patches on my knees two years ago...but so far that hasn't translated into any PA (knock on wood).

 

@ Dave...good luck with the Stelara...my side effect was getting a nasty cold a day later that lingered a bit longer than normal

 

Jim

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Permalink Reply by Dave on November 15, 2011 at 7:54pm

Cheers Jim, Now that I think about it I have been a little flu-ish, possibly the stelara or maybe burning the candle at both ends!!

 

Dave

Soccer Jim said:

Good Luck with the PA Jeff, that's the downside with Stelara it doesn't help out the PA side of things.  Considering the types of activities that I enjoy I feel very lucky not to have PA (soccer, downhill skiing).  Though I am worrisome with finally getting patches on my knees two years ago...but so far that hasn't translated into any PA (knock on wood).

 

@ Dave...good luck with the Stelara...my side effect was getting a nasty cold a day later that lingered a bit longer than normal

 

Jim

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Permalink Reply by Ken Connolly on March 26, 2012 at 10:54am

I have been on Stelara for close to 10 years now. my Arthritis has cleared up an my Psoriasis is gone.

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