The BEST news I have heard all year!
So as my Psoriasis gets worse I decided to hold off on Ramicade and seek another opinion from a new Derm. My appointment was yesterday and immediatly he tells me I have Guttate Psoriasis, which I have never really been told an offical name. Anyways he then tells me that this is usually caused by a bacterial infection most commonly in the tonsils. So his recommendation is to have my tonsils removed and be placed on antibiotics for three months. He is 80% sure that this will clear it not only temporarely but permenantly! AWESOME. It all finally makes sence though about the time I started getting this was after I was really sick on a trip to Koera. It doesnt run in my family and I dont have that much stress. SOOOOO I hope he is right I really want this gone and gone NOW! Wish me luck and I will keep you all posted!
Views: 54
Replies to This Discussion
-
Permalink Reply by Patsy Wessinger on -
Hi Ryan,
Best of luck to you!!
-
Permalink Reply by Cindy Foe on -
YAY...Good Luck Ryan!!!! Please let us know how things are going with this method of treatment!
-
Permalink Reply by Jannie M Stickney on -
Good luck! Have to tell my daughter about this,too.
-
Permalink Reply by Ryan Lohmann on
-
Well I have been taking the antibiotics for 5 days now and I also went to a dead sea salt store in the mall and purchased some dead sea salt and moisterizer. I can tell you that it is working like no other my nails are 100% clear in 5 DAYS! all my spots are fadeing and I can begin to see my normal skin under some. I can't believe that I have been dealing with this for almost three years and FINALLY someone worth a damn could diagnose what will help clear me. For all of you who have Guttate Psorisis and havent tried the bacteria antibiotics have your doctor give it a try. It may just make you smile!
-
Permalink Reply by Jane Lacher on -
Ryan - your news is awesome!!
-
-
OK! NOT GOOD! I don't know what has happened here but again the Derm is wrong I cleared for 9 days thats it then the Psirosis hit me like a ton of bricks. I went back to the Derm to ask about Stelera and this knucklehead said its still not FDA approved! UM I think he is wrong but anyway he decided to put me on MTX 5 pill in the morn and 5 pills at night once a week. I have never takin this before and hear its a cancer pill. With MAJOR side effects can you guys give me some feedback on this before I pop these in my mouth.
-
Permalink Reply by Patsy Wessinger on
-
Ryan, I am so sorry to hear you had another flare. I to was on methotrexate, and yes it is a cancer drug. I started a little more slowly than you, three pill once a day per week, they did stress to take it at the same time and day every week. As far as the side affects: nausea, tried, loss of appetite. The one good thing, if there is one is I lost weight lol. The monthly labs are a must, once my levels started going up I was taken off. I get my 5th Remicade infusion today. Best of luck to you!
-
Permalink Reply by Cindy Foe on
-
Ryan....Im sorry to hear about the flare up and about the stupid doctor!!!I know how it is to get your hope up so high thinking you have found what works for you and then wham you get hit with a flare up....makes for not only bad skin but a bad mind set....The only info of methotrexate that I can give you is just what I have been through with it.....It made me sick so they had to increase my folic acid that I took with it....and I was taking phenergan all the time because I would throw up even if it wasnt days I was taking it...I was always tired....just didnt feel up to par...and I was told a huge part of the hair falling out was due to the metho. now on the other hand I know there are some people on here that it works for wonderfully in a long term situation....aka...Mike P! so you might wanna send him an email and see what dose he takes and how it affects him and for his info....good luck Ryan!!!!
-
-
Well today was day one on the Methotrexate. No side effects yet due they usually happen on your first dose or does it take awhile?
-
Permalink Reply by Jane Lacher on
-
Hi Ryan,
I am so sorry about your flare-up. Have to agree with Cindy on the "derm". University of Mich put me on methotrexate and my skin is a lot calmer. They started me out on once weekly treatments, but ramped me up much slower. I now take 6 pills (15 mg) once a week. EXCEPT for the day I take the metho, I do take folic acid. If I don't take that med, then I do have nausea or get sick to my stomach. I did have periodic bouts of fatigue the first couple of weeks, but am doing good now. The derm monitored my blood work once weekly for the first 5 weeks (for liver or bone marrow problems). Everything looked good, so that is being backed down to every two weeks. He is targeting monthly blood work if I continue to do good. Blood work to monitor your liver and bone marrow function are really important because this med is used as a cancer agent (but at much higher dose levels). Good luck and I will keep you in prayer.
-
-
I asked my Derm about the blood test and he says that he does not believe in them. As long as I don't drink or smoke then I will be fine. That is what he tells me. BUT I don't want to take any chances what do I do when he refuses to give these test? Should I see my Doctor and have him check the blood?
-
Permalink Reply by Cindy Foe on
-
Do wehat you feel is right for you.....If you arent happy with your derm I suggest changing right now as you start something...you dont wanna be on a medication for years come to find out that it is dangerous to take it at certain levels and such....see what im saying here..you have to know you body...you have to use your mind and know....once you research it and he still dont give you the answers you think he should or the test you think he should I would suggest going shopping....for a new derm that is....good luck....im sorry you are having to go through this....this disease is bad enough without doctors thinking they cant listen to their patients.....we live our lives and know our bodies....they see us for a few mins every now and again and think they can give us the answers.....(except my doctor of course...I love him....he is the best, he saved my life)
What's Hot at Psoriasis Cure Now
Write your Lawmakers and urge them to increase research on psoriasis and psoriatic arthritis. Just enter your zip code here and click GO!
---------------
Sign up to receive Psoriasis Cure Now's free, quarterly Psoriasis Treatment Tips newsletter by email. The latest from top experts, plus common sense ideas from other psoriasis patients.
---------------
---------------
Visit our home page by clicking our logo:
© 2012 Created by Psoriasis Cure Now.
