things you wanted to do but couldnt

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Permalink Reply by marcos peralta on December 10, 2009 at 1:02am

for example your friends went to the beach or w/e and you didnt go with them because of it. stuff like that.

how does it affect your self-esteem?

and have you ever used it as a scapegoat?

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Permalink Reply by Afifa Fatema on March 31, 2010 at 1:46am

I already had plaque psoriasis on my legs and thighs but i developed pustular psoriasis soooo i could not walk at all or even use my hands to eat food or take a shower...etc!!! but now my palms are okay but my feet wont get better...so i had to quit school and quit work...i dont have a social life what so ever...and i miss traveling...i used to travel sooooooo much before...its like my life is on pause right now...and now my family put me on an ayurvedic treatment....sooo yaaah there goes all my food!!! :-/ ( oh and i m not even worried about self-esteem..)

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Permalink Reply by Darla Lynn Tolliver on March 31, 2010 at 8:58am

can any of you not swim with p?
does it infect your sores or irritate?

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Permalink Reply by Karla Barnes on March 31, 2010 at 2:41pm

I use to swim in a pool all the time with p. I have been told some sunlight is good for it and the salt water is good!?

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Permalink Reply by Darla Lynn Tolliver on March 31, 2010 at 7:34pm

thank God! i thought you were in pain. i almost thought there was no hope b/c swimming is sooo good for you.
definitely some sunlight is good for you either way. not to the point of sunburn, of course. haha!

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Permalink Reply by Joanne Moncato on March 31, 2010 at 8:30pm

I also have inverse P which has no lesions but it gets pink purple and raw so it makes it very difficult to wear regular clothes for long periods of time without it becoming raw, weepy and hurting and burning like hell from sweating. It is worse in the winter but it stays purplish and pink always so I can't wear any sleeveless tops in the summer. If I sweat to much in the summer it gets bad to and I am in a lot of pain with it plus add lesions from guttate and or plaque psoriasis and the psa acting up. Last summer I had scalp p for a month and thought at times I would need a straight jacket, and plus my ears were bad. I had it in my ears for 3 years but I am thankful my ears are clear right now. I also lost my job and have no docs or ins. so sometimes it is rough but I have decided that either P/PSA can kick my butt or I can try to kick it's butt. I really have to because I don't have many choices. I am also very thankful it is not any worse right now. To everyone with this pain in the butt P and or PSA my hope is that you all feel much better this year and the years ahead. Let us all be thankful for sites like this one where we can help each other.

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Permalink Reply by Zareen on April 1, 2010 at 9:15pm

I,m totally agree with you..its so annoying when people keep staring at us..they dont undesrtand what is p eventhough i explain..they always thought that they can get p if they touch me..i'm afraid to be in serious relationship with a guy.....

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Permalink Reply by Darla Lynn Tolliver on April 2, 2010 at 7:02pm

what cleared it up for you Wasim?



Wasim Naqvi said:

oh many things before my condition improved:

1. Weybridge Juniors football club - u cant play with em unless u wear t-shirts and shorts, the club kit
2. When I had it bad, I never went to the public beaches and if ended up being there, i was fully dressed.
3. Confidence with women - a big blow!!
4. Swimming in fancy lagoons in the summer - thats a bummer

Aren't u sick of being greased up all the time? And when u don't the skin pretty much screams out the whities and u end up being compelled to do it....used to really wind me up!!

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Permalink Reply by Sarah on April 6, 2010 at 2:33pm

Thanks to my clearing using Enbrel and Methotrexate, I am now able to have massages and manicures and pedicures, all things I never got to do before. Also, I'm spending a small fortune on cute new clothes to celebrate. No one else can understand what it means to me to be clear, just other people who have psoriasis. It is the strangest feeling. I try to forget the other things I missed out on.

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Permalink Reply by laura higgins on April 7, 2010 at 4:04pm

I can't wear shorts to the gym, I can't wear short sleeves, I couldn't wear capri pants or a skirt w/o stockings on Easter....etc...but at least summer is approaching and that helps

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Permalink Reply by Zareen on April 8, 2010 at 6:48am

Do you avoid certain foods like chicken or egg? Do you take any supplement?

Wasim Naqvi said:

Hi Darla, i took up the natural option opposed to the derms proposal to get me on cyclosporin or methotrexate. Works in 2 ways, internally and externally. External: I moved to Dubai, hot climate. Internal: Changed my dietary completely in accordance to various advice from various docs from different regions of the world and other patients. Etc! There is only one way, the Natural way!

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Permalink Reply by NikkiRica on April 9, 2010 at 9:44am

There are so many experiences I would love to live through but P stops me!!! I am so self conscious about my disease and it is so difficult to find someone who accepts or understands! I have so many talents to share but this makes it hard. And I love the beach....being on the beach is a true challenge!

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