Started this discussion. Last reply by Dal L. Gordon Dec 13, 2009. 43 Replies 0 Likes
Started this discussion. Last reply by Glenna May 21, 2009. 4 Replies 0 Likes
Glenna posted a blog post
Glenna replied to james payne's discussion Psoriasis plaques gone but marks remain
Ken Connolly left a comment for Glenna
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Ken Connolly left a comment for Glenna
Glenna left a comment for Ken Connolly
Glenna posted a blog post
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Glenna replied to Caroline Brooks Benson's discussion Support Group
Glenna left a comment for Caroline Brooks BensonPosted on April 28, 2012 at 7:27am 0 Comments 2 Likes
My skin is the best it has been in 20 plus years! no more flakes, no more itch, no more gross!!! Still a long way to go!! its been two months now and everything is calm. I am going to keep going although I know there is not a cure for P...I truly believe that if I continue at this rate my P will go away because each day I notice the P shrinking more and more. LOVE MY NEW LIFESTYLE!!!
Posted on March 26, 2012 at 10:17am 0 Comments 0 Likes
Mike,
Long time no chat!!
How are you doing??
I wanted to ask you about something............
As you know I have severe psoriasis......well recently I started taking a health shake and it aids in weight loss too!! yummy yummy
BUT WHAT I NOTICED IS...........
my skin is no longer producing huge piles of flakes, the itch stoped, no more scratching, and the spots are shrinking????? like wth??
what could be causing this to…
Continue
Ken Connolly said… Hi Glenna
I was in a clincal trial using Stelara as my only medication for my P .....it cleared me up 100% after taking it for 3 months. When the clinical trial was over there was a transistion period where I didnt get Stelara untill I received funding. the transition period was 8 months. My P got bad during those months. the before pic was taken minutes before I took my first injection after the transition period, The after pic was taken 1 month later to the day. Stelara really works for me but please remember it is not a cure if you stop taking it your P will come back with a vengence! I suggest you find some source of funding as Stelara is very expensive (well worth it though) my dosage is 90 mil every 3 months and that roughly costs 4 grand every 3 months. To get funding go thru a clinical trial you get the meds free, after the trial your doctor can then go to the makers of Stelara and tell them how good it works for you and you would be surprised at how fast they will help you get the funding. If you would like to talk to someone from Stelara to see how you should proceed with getting funding please email me directly @ fishingman000@hotmail.com I do not like to give out contacts in an open forum. Please keep in mind these are Canadian contacts as I am in Canada but they should be able to forward you to someone in the states that can help you. I pray if something I tell you helps you I will be happy....I know your grief and your feelings as I have been there for too many years. I have found something that works for me and I know it will work for you. If theres anything I can do to help you please let me know
Ken
Ken Connolly said… for the first 5 years I was in a clinical trial so the doctors administered the Stelara. But now that Im done with the trial I administer it myself. Its really quite easy Stelara comes in a prefilled spring loaded syringe and delivered right to my door. Stelara works wonders for me and I recommend it to anyone who has chronic plaque psoriasis. The only downfall with it is that it is very expensive. My doctors worked with the makers of Stelara and got me on a plan where they pay the co-pay that my benefit plan dosnt pay
Caroline Brooks Benson said… 
Caroline Brooks Benson said…
Rhonda said…
Eileen Clancy said…
KJ said…
KJ said… Write your Lawmakers and urge them to increase research on psoriasis and psoriatic arthritis. Just enter your zip code here and click GO!
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