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Glenna
  • Female
  • Wilmington, NC
  • United States
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Glenna's Discussions

Send your picture to the Gov!!

Started this discussion. Last reply by Dal L. Gordon Dec 13, 2009. 43 Replies

Chemotherapy for Cancer

Started this discussion. Last reply by Glenna May 21, 2009. 4 Replies

 

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Glenna's Blog

healing more and more every day!!

Posted on April 28, 2012 at 7:27am 1 Comment

My skin is the best it has been in 20 plus years! no more flakes, no more itch, no more gross!!! Still a long way to go!! its been two months now and everything is calm. I am going to keep going although I know there is not a cure for P...I truly believe that if I continue at this rate my P will go away because each day I notice the P shrinking more and more. LOVE MY NEW LIFESTYLE!!!

Mike can you contact please??

Posted on March 26, 2012 at 10:17am 0 Comments

Mike,

Long time no chat!!

How are you doing??

I wanted to ask you about something............

As you know I have severe psoriasis......well recently I started taking a health shake and it aids in weight loss too!! yummy yummy

BUT WHAT I NOTICED IS...........

my skin is no longer producing huge piles of flakes, the itch stoped, no more scratching, and the spots are shrinking????? like wth??

what could be causing this to…

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At 2:57am on March 28, 2012, Ken Connolly said…

Hi Glenna

I was in a clincal trial using Stelara as my only medication for my P .....it cleared me up 100% after taking it for 3 months. When the clinical trial was over there was a transistion period where I didnt get Stelara untill I received funding. the transition period was 8 months. My P got bad during those months. the before pic was taken minutes before  I took my first injection after the transition period, The after pic was taken 1 month later to the day. Stelara really works for me  but please remember it is not a cure if you stop taking it  your P will come back with a vengence! I suggest you find some source of funding as Stelara is very expensive (well worth it though) my dosage is 90 mil every 3 months and that roughly costs 4 grand every 3 months. To get funding  go thru a clinical trial   you get the meds free, after the trial  your doctor can then go to the makers of  Stelara and tell them how good it works for you and you would be surprised at how fast they will help you get the funding.  If you would like to talk to someone from Stelara to see how you should proceed with getting funding please email me directly @ fishingman000@hotmail.com  I do not like to give out contacts in an open forum. Please keep in mind these are Canadian contacts as I am in Canada  but they should be able to forward you to someone in the states that can help you. I pray if something I tell you helps you I will be happy....I know your grief and your feelings as I have been there for too many years. I have found something that works for me and I know it will work for you. If theres anything I can do to help you please let me know

Ken  

At 2:20am on March 27, 2012, Ken Connolly said…

for the first 5 years I was in a clinical trial so the doctors administered the Stelara. But now that Im done with the trial I administer it myself. Its really quite easy Stelara comes in a prefilled spring loaded syringe and delivered right to my door. Stelara works wonders for me and I recommend it to anyone who has chronic plaque psoriasis. The only downfall  with it is that it is very expensive. My doctors worked with the makers of Stelara and got me on a plan where they pay the co-pay that my benefit plan dosnt pay

At 7:02pm on December 7, 2010, Caroline Brooks Benson said…
I would definately try to find a doctor and get on some sort of program that could pay for your meds. That's what I've been doing.

Try a luke warm bath with apple cider vinegar added. I was doing that before I started most of the meds I take. It helps a lot with the itching. Just try to avoid getting your bath water in your eyes, it's stings. And make sure it's apple cider vinegar. A cap full will do.
At 9:07pm on December 06, 2010, Marie Fisher gave Glenna a gift
At 8:09pm on December 5, 2010, Caroline Brooks Benson said…
Hi. I'm seeing Polley Clinic in Rocky Mount. Dr. Amos. I'm using Enbrel. I have no insurance. I get mine through the patient program Enbrel offers! Please ask your doctor about these programs.. they could help tons!
At 8:42pm on February 10, 2010, Rhonda said…
Are you going to come to the walk in Charlotte this year? It's going to be on June 5th. If you can make it and/or if you want to help with it, please let me know. Thanks!
At 8:41pm on December 13, 2009, Patsy Wessinger said…
Glenna, I am with Jane, wish I could give you a big hug right now!!! I am so sorry you are having such a hard time, but you are never alone we are here for each other. Take care talk with you soon.
At 9:55am on May 13, 2009, Eileen Clancy said…
Thanks, Glenna! This site is great, I learned about it through Ed Duke's site Flakehq.com. Had P since I was 12, what about you?

Eileen
At 2:03pm on May 11, 2009, KJ said…
That is great , I am so glad that your arms are clearing . I also am taking an oil to try I can't remember what its called right now though but it is in the omega 3 family. I am just so bad at remembering to take it . That is great that you found some dresses you can wear. I am going to be out looking for some so hopefully Ill find something.
At 1:01pm on May 11, 2009, KJ said…
I totally understand it to me is devestating to be stuck in the middle of summer in a pair of blue jeans and long sleeves . I just miss even feeling the wind on my legs ,its stupid little things like that you miss. And then on the way hot days oh its rough. I try to get creative for clothes that can be cooler but I am not great at that and I really do struggle in that dept. so I usually wear blue jeans. But geesh what I wouldnt give to wear a mid length summer dress again.
 
 
 

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