"My comment RELAX RELAX. Do anthing you can do to keep your mind off of your skin. Watch the products that you use. Keep skin well-moistoned--vaseline works for me."
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Lynda Tutt
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Lynda Tutt's Discussions
Raptiva
Started this discussion. Last reply by Lynda Tutt Jun 19, 2009. 8 Replies 0 Likes
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Lynda Tutt replied to Lynda Tutt's discussion Raptiva"Well, that didn't happen to me. Psoriasis attacked the tatoo and added just a couple more spots for good measure.
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Brenda Plese replied to Lynda Tutt's discussion Raptiva"I have had psoriasis since I was 12 and at 40 I got a tattoo I am now 53 and that is the only area that I have never had one bit of this hateful thing I have had thoughts of getting my whole body done."
Psoriasis Cure Now replied to Lynda Tutt's discussion Raptiva"Breaking news: ***THE MAKER OF RAPTIVA HAS DECIDED TO REMOVE IT FROM THE MARKET DUE TO THE RECENTLY-DISCOVERED RISKS ASSOCIATED WITH IT. Because psoriasis worsening can occur when one stops taking Raptiva, all Raptiva patients should consult with…"
Sharicka Long left a comment for Lynda Tutt"Thank you, madam. I'm loving this website and everyone's perspective!!! Are you getting a tattoo!?!?!?!"
Lynda Tutt left a comment for Sharicka Long"Checking out the website and your tatoo. Great pictures. Thanks again for your help and support"
Lynda Tutt replied to Psoriasis Cure Now's discussion Tattoos"Thanks Rachelle. I just thought Psoriasis would take the tatoo over and I would have something else to scratch forever."
Lynda Tutt replied to Lynda Tutt's discussion Raptiva"You are a great communicator. So did the tatoo survive or does it keep scaling? Do I remove the scales? Keep moisturizing? Thanks"
Lynda Tutt replied to Lynda Tutt's discussion Raptiva"Lynda Tutt said:Sharicka Long said:Hi Lynda,I have a few tattoos. I started the tattooing phase while trying to cover up these darn scars. I had no problems whatsoever. I wouldn't get a tattoo over active lesions. I doubt they'd tattoo an…"
Lynda Tutt replied to Lynda Tutt's discussion Raptiva"Sharicka Long said:Hi Lynda,I have a few tattoos. I started the tattooing phase while trying to cover up these darn scars. I had no problems whatsoever. I wouldn't get a tattoo over active lesions. I doubt they'd tattoo an active area…"
Psoriasis Cure Now replied to Lynda Tutt's discussion Raptiva"The tattoo question is such a good one, we created a separate Discussion for that. You can find it under "Forum," above.
As for Raptiva, the product label urges that a Raptiva patient NOT suddenly stop treatment without doctor…"
Sharicka Long left a comment for Lynda Tutt"I found this information online regarding PML and how Raptiva may play a part: PML is a neurological disorder caused by the JC virus, the latter destroying the nerve cell protecting substance myelin. Up to 85 percent of adults carry the JC Virus,…"
Sharicka Long replied to Lynda Tutt's discussion Raptiva"Hi Lynda,
I have a few tattoos. I started the tattooing phase while trying to cover up these darn scars. I had no problems whatsoever. I wouldn't get a tattoo over active lesions. I doubt they'd tattoo an active area anyway. One thing,…"
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Comment Wall (5 comments)
- At 12:33pm on January 11, 2010,
H said…
- Thank you very much! Take care.
Peace
H
- At 8:07pm on April 2, 2009, Sharicka Long said…
- Thank you, madam. I'm loving this website and everyone's perspective!!! Are you getting a tattoo!?!?!?!
- At 9:23pm on April 1, 2009, Sharicka Long said…
- I found this information online regarding PML and how Raptiva may play a part: PML is a neurological disorder caused by the JC virus, the latter destroying the nerve cell protecting substance myelin. Up to 85 percent of adults carry the JC Virus, but it only becomes active when the immune system is severely oppressed. PML leads to a decline in neurologic function and eventually death, and no preventative therapy or cure currently exists.
With that said, I wonder if they can identify adults carrying the JC virus.
Take a look at these websites.
http://www.fiercepharma.com/story/genentechs-raptiva-gets-black-box-warning/2008-10-17
http://www.aafp.org/online/en/home/publications/news/news-now/health-of-the-public/20090224raptiva-advis.html
- At 8:57pm on April 1, 2009, Sharicka Long said…
- Hey there, I'll look and get the info right now
- At 5:53pm on April 1, 2009, Sharicka Long said…
- Hi Lynda,
Well that just stinks! Have they done a risk analysis? I went online and two patients that I saw were up in age and had weakened immune systems. I'm certainly no proponent of a drug that has a high potential to kill me but I would analyze my own personal risk. I wonder what the ratio is for people taking the drug and those who have died. Being that there is only three, one could rationalize that the percent chance of death would be very low. With that said, you don't want to be a part of that small percent. What other meds have you tried? Enbrel brought me great success. I did the UVB light, Methotrexate and enough steroids to give me a full beard (JUST kidding but there is a whisker or two) but none of them worked. How's your climate? Here it is so dry. Is the climate and humidity not good to you in L.A.? Is your affected area centralized or does it take free reign of your entire body? Mine was everywhere except for my hands and feet and covered over 85 percent of my surface. Now I just have a few scatter-brained lesions that don't realize they need to go! Just a sidenote...When they find a cure, I'm heading out to LA to see what kind of trouble we can get into:) Later gator!
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