Psoriasis Cure Now Community Network

Skyla
  • 23, Female
  • Everett, WA
  • United States
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Skyla's Friends

  • R. KUMAR
  • Michael Ó Duibhir
  • Brian (BJ) Johnson
  • Jenna
  • Fred Foe
  • Cindy Foe
  • shanika mccrae
  • Sharicka Long
  • Monica Shawn
  • craig e blair
  • Naresh Kumar

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Skyla's Page

Latest Activity

Skyla replied to Karen M> Koenig's discussion Psoriasis on eyelids!
"I am having the same issue! So painful!"
Jun 26, 2011
Skyla and Michael Ó Duibhir are now friends
Jun 26, 2011
Skyla is now friends with R. KUMAR and craig e blair
Apr 22, 2010
Skyla and Naresh Kumar are now friends
Nov 10, 2009
Skyla is now friends with Sharicka Long and Brian (BJ) Johnson
Aug 29, 2009
Cindy Foe left a comment for Skyla
"singing....HAPPY BIRTHDAY TO YOU....HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY MY DEAR SKYLA.....HAPPY BIRTHDAY TO YOU!!!!!!!!!!(good thing you only had to read my singing and not hear it, you might not have such a nice day then,,,,lol).....I know you…"
Jul 28, 2009
Sharicka Long left a comment for Skyla
"Hi Skyla, You'll make your way through this. I think we all have our bad days. It's funny, I think as women sufferers, we are expected to be "soft"...Some day's my skin is as rough as a guy's. I think it makes us…"
Jul 25, 2009
Chrissy commented on Skyla's blog post venting
"I am with u, i just started a new relationship and am embarresed to undress in the light - i care deeply and he is very understanding but i still am sick of it also anyone come up with a cure :) please let us know immediately"
Jul 16, 2009
Jenna left a comment for Skyla
"My parents knew as my mum has it but as for doctors when my mum was diagnosed when she was 16 they didn't have a clue. They knew what mine was because of my mum. It has been hard when people point it out or ask you as its very embarrassing,…"
Jul 1, 2009
kim arseneau devito commented on Skyla's blog post venting
"I am new here and so happy i found this site. I myself am a sufferer and get depressed when people look at my elbows, (whcih are nasty) but hey, if i keep my head up, i am still a beautiful person. at least the rest of my psoriais is hidden by…"
Jul 1, 2009
Monica Shawn and Skyla are now friends
Jul 1, 2009
Skyla left a comment for Jenna
"Did your parents or doctors know that it was psoriasis when you were younger or did you get the run around to? How did-do you explain to people what you have is?"
Jun 30, 2009
Skyla left a comment for Cindy Foe
"lol, Im still learning how to use this site. I didnt know I had comments. Last month was the first walk for the seattle area. I went. Not very many people were there but I wore my hair up and wore a tank top because I knew everyone already knew what…"
Jun 30, 2009
Skyla updated their profile
Jun 30, 2009
Skyla is now friends with Jenna and Fred Foe
Jun 30, 2009
Monica Shawn commented on Skyla's blog post venting
"I have been at the point of just wanting it to go away no matter how just be rid of it. It is very depressing. Take control. Don't let it control you. I can remember at one time being in so much pain that I fantasized jumping into the ocean as…"
Jun 30, 2009

Profile Information

I have had good ol psoriasis since about the age of 12. Started on my elbows and took off from there. No one knew what it was and I kept getting tossed around from Doctor to Doctor and they couldnt help me either. Finally went to a dermatology clinic and got told it was psoriasis. I have tried many topicals but they dont help much. Everyday I wish it would just go away. Im sick of it. I have been on and off enbrel for the past 5 years. Enbrel is the only drug that has made my "spots" lighten up and fade away. Once I stop Enbrel, psoriasis comes back. The past two years have been horrible for me. My eyelids have now been attacked. I tried applying some gel I have and good golly, I thought I was going to lose my eyes. Not only have my eyelids been attacked but inside my ears! What the heck. So because my psoriasis is so bad, I don't wear my hair up in public. I dont care if my elbows are exposed. Im not going to make myself suffer when its 80 degrees out and im trying to cover up. Forget that. My eyebrows and in between my eyes have been affected also. If I apply my psoriasis gel everyday, then it stays away. My back and sides are covered in plaques. They range in size from as small as a dime to about the size of and apple. I experience flakeyness, some bleeding here and there, terrible burning sensations every now and then and most weeks my psoriasis is very very red. No one in my family has psoriasis as bad as I do. My dad's older brother has-had psoriasis and my mom's mom has it on her elbows. I have altered my life since I broke out with psoriasis. Im tired of the questions or "what happened to you". Leave me alone.(The general public can be so stupid). I am so glad I found this site. I can be me! and I love it :) And you all know what happened to me lol, I have psoriasis, thats what happened lol. Im willing to answer questions you may have.

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Skyla's Blog

venting

Posted on June 25, 2009 at 12:27pm 7 Comments

I just want my psoriasis to go away. Im sick of it controlling my life. Geesh, Why why why! I'll be single forever.

Comment Wall (5 comments)

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At 9:18am on July 28, 2009, Cindy Foe said…
singing....HAPPY BIRTHDAY TO YOU....HAPPY BIRTHDAY TO YOU...HAPPY BIRTHDAY MY DEAR SKYLA.....HAPPY BIRTHDAY TO YOU!!!!!!!!!!(good thing you only had to read my singing and not hear it, you might not have such a nice day then,,,,lol).....I know you off in Vegas celebrating now...but I had to tell you happy birthday on your special day...hope you have having a wonderfully fun and safe birthday...
At 10:29am on July 25, 2009, Sharicka Long said…
Hi Skyla,

You'll make your way through this. I think we all have our bad days. It's funny, I think as women sufferers, we are expected to be "soft"...Some day's my skin is as rough as a guy's. I think it makes us vulnerable. I think we sometimes tend to settle. I love that so many women here have men who aren't psoriasis sufferers. I've often (in the past) thought to have a man with psoriasis who "gets" me. Today, I think that with or without psoriasis, a guy is lucky to have me! In my unbiased opinion, of course! What do you think about that...Would you rather be with another psoriasis sufferer? That sounds like a good discussion question! I I lived in Oak Harbor for 8 1/2 years...The weather in Washington isn't that great for our ailments...Oklahoma state did my body good, for sure. I'd say the most positive person here is Cindy. When your day isn't going great, hit her up for a pick me up. Hell, just reading her blogs inspires me. When you're angry and want to vent, come find me:) hehe
At 10:42am on July 1, 2009, Jenna said…
My parents knew as my mum has it but as for doctors when my mum was diagnosed when she was 16 they didn't have a clue. They knew what mine was because of my mum. It has been hard when people point it out or ask you as its very embarrassing, especially in front of a crowd, i used to cry all the time when someone asked me about it, it was like an automatic reation i couldn't stop. Now you just have to get on with it. My fiance has given me a lot of confidence, like it is annoying having it but there are worse things out there which you could be diagnosed with. What kinds of treatments do you use??
At 12:43pm on June 29, 2009, Jenna said…
Hey Skyla,

I've had my psoriasis for 20 years now & i'm only 24. It is crap & takes over your life but at some point you have to just accept it & don't let it ruin you life. I'm engaged to be married next year hopefully & it did take a while to meet someone that understood & supported me. There is someone out there for you!!!! By your picture ur a very pretty girl anyway, it shouldn't be hard for you to attract someone!!!
At 12:59pm on June 25, 2009, Cindy Foe said…
Oh yeah Skyla...i forgot to mention....Fred and I will be at the walk in North Carolina in october...there are a few more walks this year....check them out...try to make one...If you make it to the N.C. one....come be on our team....unFOEgettable...get it...our last name is FOE...lol...we work our name into things like that...we think it is cute... Have a good day girlie!!
 
 
 

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