All Blog Posts (115)

To think, or not to think!

Since I was diagnosed with this, I have been really trying not to think of my life. I have been just trying to take one day at a time. and just not think at all! But at time now its getting to me so badly. I am always up till almost noon then i sleep during the day. I tried to change my sleep schedule but when i woke up all alone in my room, i just didnt see the point of being up at all. i wait for my mom to get home. Last few days have been more challanging than before, I am sooooo, sooooooo

… Continue

Added by Afifa Fatema on March 13, 2010 at 5:09am — No Comments

Pregnant and in need of prayers

So, I just found out Saturday that I am pregnant again. I just had a miscarriage last February so I am terrified. This time my psoriasis hasn't spread...which is realllly strange. That was how I knew I was pregnant last time. I'm not sure what that means...if it means anything....but it sure is freaking me out. Weird right? Wanting my psoriasis to get worse so that I know everything is ok. haha. Its not just that though, I have no morning sickness this time. :\ This will be my 5th pregnancy (I'v… Continue

Added by Barbara Parker on March 9, 2010 at 7:42am — 9 Comments

Sadness fills my heart……

I feel the need to write this….I have always used the blog on here as a release…I have learned if I bottle things up and don’t let them go them my psoriasis and my attitude will be effected….so to keep that from happening I will blog about my sadness…..

… Continue

Added by Cindy Foe on March 4, 2010 at 11:00pm — 1 Comment

Humira

Hi all,

My name is Troy I am a 36 year old male from Wisconsin. I have been dealing with psorasis for most of my life. Like most of you I have been on all the topical medications I can, I took psoratiane (sp?) I am an emergency medical technician and a police officer. I will be exposed to a lot of nasty stuff. I was suppose to start taking Humira a couple days ago. I had a Humira nurse come to my house to show me how to take the injections. I chickened out. I see needles all th

… Continue

Added by Troy James on March 3, 2010 at 12:02pm — No Comments

We are under spam attack

Our apologies to all of you for the spammer who is attacking our site pretty hard over the last 48 hours. We will try to delete it, and work to add new features to raise their costs, but in the meantime, please bear with us.

The good news, I suppose, is spammers now think this network has grown big enough to be worth their time spamming us. But there are pet lover sites, rock band sites, etc., that are 50 and 100 times the size of our psoriasis site! Which raises the bad news, which is… Continue

Added by Psoriasis Cure Now on March 1, 2010 at 12:11pm — No Comments

can we say, "PAIN"!!!!!!!!!!

I'm oh so frustrated with my pustular psoriasis. and very unhappy that the nurse messed up with my paper work that I'm late receiving my stelara. I'm in so much pain that my feet and my palms hurt to the touch. I've been typing with like 6 fingers!! Very, very, very frustrated with this. These last 6 months and on going time has been one of the most challenging time of my life. Everyday I wake up and think maybe today, just maybe I'll be able to walk normally. I end up crying then going back

… Continue

Added by Afifa Fatema on February 27, 2010 at 10:39pm — 4 Comments

My journey with Humira

So 2 weeks ago I switched from Enbrel to Humira. I had been on Enbrel for over 6 years. It took me from 90% covered to about 20% covered with about 3 or 4 flair ups over those 6 years. The last one was enough. I knew there were more meds out there and I was ready to try something new. The first shot of Humira stung so bad!!! But in the last two weeks I have noticed a difference.I did get a terible sinus infection two days after injection. Here are pics of two weeks ago… Continue

Added by Stephanie Henson Willard on February 27, 2010 at 7:38pm — 4 Comments

New Post, How did your day go, and how is it going?

We're journaling, so lets encourage each other through our daily lives. Continue

Added by Dal L. Gordon on February 26, 2010 at 11:00am — 1 Comment

Psoriasis/psoriatic arthritis research funding sets new record!

Research funding for psoriasis and psoriatic arthritis through the U.S. National Institutes of Health (NIH) set a new record in 2009. Total funding for the year was $16 million. The total includes $13 million in base funding plus $3 million in funding from the Stimulus Bill.

By way of comparison, in 2005, the year Psoriasis Cure Now was founded, the budget was just $6 million.

Progress! We should all be excited by this. You can read more about this good new… Continue

Added by Psoriasis Cure Now on February 24, 2010 at 10:12am — No Comments

I'm glad I'm not alone however....

I'm not exactly sure where to start - 3.5 yrs ago I guess...that's when my psoriasis started behind my ears and then the weight gain....I am now approximately 55 pounds overweight - I'm 5'2" and almost 200#; I weighed less when I was 9 months pregnant with my daughter! Anyway, to say that stress brings this 'disease" to a head "using the term loosely" is an understatement however....if I had known stress could cause this much pain, debilitation, fear (of people seeing the skin "falling" from my… Continue

Added by Audrey Perry on February 21, 2010 at 5:11pm — 1 Comment

No Help For this Psorimadness.!!!!!!!!!!

Hello everyone. First my heart goes out to all of you for I know your pain first hand. I will try to make this as short as possible. I think I started with my psoriasis long ago with different things showing up at different times and not being able to put it all together.

In 2007/2008 I was working as a floral designer standing on my feet all day. I had problems with my feet before but this was a nightmare. On a pain scale of 1-10 it was a 10 all day every day plus my

… Continue

Added by Joanne Moncato on February 19, 2010 at 2:00pm — 2 Comments

Model CariDee English suffers severe psoriasis flare

Model CariDee English has come forward to reveal a severe psoriasis flare that she has been battling recently.

http://www.ny1.com/6-bronx-news-content/ny1_living/113836/top-model-goes-public-about-her-common-skin-disorder

The link includes photos of her during her flare. There had been media reports that she had been on Raptiva, which was pulled from the… Continue

Added by Psoriasis Cure Now on February 18, 2010 at 1:00am — No Comments

other meds...

since i was 7 i had psoriasis. until now its seems that i have chicken pox because of plenty red spots... i just like to us what are other meds that could really help me....l just tried methotrexate & some tropical steroids ointments Continue

Added by Patrick De Guzman on February 15, 2010 at 9:02am — No Comments

Depression always knocks at my door

I've been suffering from psoriasis for about three years now and nothing has ever made it better. I've been to five dermatologist and none of them seem to care about me as a patient. They are all tossing me around like I'm some kind of animal. I really don't know what to do. It's like every morning I wake up the first thing that creeps through my mind is my psoriasis. I scratch myself to sleep. I've tried practically everything but nothing seems to work. I live where the sun always shines, the p… Continue

Added by Jel Jelly on February 14, 2010 at 3:11am — 5 Comments

NEW

Hi everyone!

I am new to this site and i guess you could say to psoriasis as well. I have had it for a little over a year, it has already spread to 50% of my body, not completely covered but patches all over. My scalp is the worst, i hate the flakes, even there minutes after i shower :( If anyone has any helpful advice it would be greatly appreciated, thanks!

Continue

Added by Stephanie C on February 12, 2010 at 2:39am — 2 Comments

Ready for Stelara!!

AS long as i can remember i always had to deal with ezema, psoriasis, then PSA! As if life wasn't difficult enough with those, with simponi i developed pustular psoriasis. GREAT!!! thats all i needed!!! And it had to develop while i was getting married!!! Life is just lovely!!! So now all i remember about my most special days are that i was freaking tired all the time and cranky and just oh so tired that i dont remember how i got through those days!!! Well i didnt know why i was feeling that way… Continue

Added by Afifa Fatema on February 11, 2010 at 8:35pm — No Comments

Psoriasis on my Knee

I have psoriasis on my knee that I need to keep treated, but I just lost my medical and dental insurance and can not afford tanning bed treatments or probiotic supplements, both which have helped m… Continue

Added by pat griswold on February 10, 2010 at 11:10pm — No Comments

Daughters with Psoriasis

Both of my daughters have Psoriasis. My 25 year old started when she was 5 years old and was started on topical and oral steroids, continued with all the usuals--methotrexate, embril and another experimental one, both having some results. She had light therapy and used tanning booths but we quit all the steriods and do nothing now other than some OTC topical creams. She has no health insurance.

My 21 year old is a Down syndrome on Medicaid and Social Se

… Continue

Added by William W. McGraw on February 8, 2010 at 4:30pm — No Comments

Update on me

Just thought I would give you all an update on me. You all know that I have been having a rough time for the last few months. Well I have started to improve. About two weeks ago I finally was able to get my Enbrel and start back on it. I also got a tanning bed around that time and have been laying in it. Which has greatly help my p. My patches have started to clear and get smaller. Then today my Clobex spr

… Continue

Added by Sarah on February 6, 2010 at 10:08am — No Comments

LIFE WITH P & PA & WHAT WORKED 4 ME

I'M ONLY ON SHOT 2..IT TAKES 12 WEEKS FOR YOU TO START GETTING RESULTS FROM STELERA..SO FOR MY FLAKING TO BE SO MUCH BETTER IS A MIRACLE ; ) EVERYONES P IS DIFFERENT..ENBREL CLEARED ME FOR YEARS AND MADE MY ARTHRITIS GREAT TOO..WORKED FOR APPROX FOUR YRS ..THEN CYCLOSPORIN WAS MY WONDER DRUG CLEARED MY SKIN MADE ME FEEL GREAT...PREDNISONE HAS DONE SO MUCH DAMAGE TO ME IT IS UNREAL..THE REASON FOR THE CAPS..I HAD CATERACTS TAKEN OFF BOTH EYES BY AGE 25..CAUSED FROM THE PREDNISONE..OSTIOPOROSIS TH… Continue

Added by CINDY LUTTRELL on February 5, 2010 at 11:02pm — No Comments

< Previous Post

Latest Blog Posts

Blog Topics by Tags

Monthly Archives

2010

March (6)
February (18)
January (14)

2009

December (10)
November (2)
October (6)
September (11)
August (4)
July (10)
June (9)
May (12)
April (8)
March (5)
February (6)

2008

November (1)

Welcome to
Psoriasis Cure Now Community Network

Sign Up
or Sign In

What's Hot at Psoriasis Cure Now

Write your Lawmakers and urge them to increase research on psoriasis and psoriatic arthritis. Just enter your zip code here and click GO!

---------------

Sign up to receive Psoriasis Cure Now's free, quarterly Psoriasis Treatment Tips newsletter by email. The latest from top experts, plus common sense ideas from other psoriasis patients.

---------------