My "P" story

Comment

Comment by CINDY LUTTRELL on February 5, 2010 at 10:17pm

I'M ONLY ON SHOT 2..IT TAKES 12 WEEKS FOR YOU TO START GETTING RESULTS FROM STELERA..SO FOR MY FLAKING TO BE SO MUCH BETTER IS A MIRACLE ; ) EVERYONES P IS DIFFERENT..ENBREL CLEARED ME FOR YEARS AND MADE MY ARTHRITIS GREAT TOO..WORKED FOR APPROX FOUR YRS ..THEN CYCLOSPORIN WAS MY WONDER DRUG CLEARED MY SKIN MADE ME FEEL GREAT...PREDNISONE HAS DONE SO MUCH DAMAGE TO ME IT IS UNREAL..THE REASON FOR THE CAPS..I HAD CATERACTS TAKEN OFF BOTH EYES BY AGE 25..CAUSED FROM THE PREDNISONE..OSTIOPOROSIS THROUGH OUT MY WHOLE BODY..PREDNISONE CAUSED THIS TOO..THE HOSPITAL OVER DOSED ME SO BAD ONCE THE UNDERSIDE OF MY ARMS ARE COVERED WITH WIDE STRETCH MARKS FROM ARM PIT TO ELBOW..THEY BLEW ME UP LIKE A BALOON..I ONLY TAKE DOSE PACKS NOW AND ONLY WHEN I CANT TAKE IT ANY MORE..AND THE MOOD SWINGS CAUSED BY IT WERE OFF THE CHARTS..MY POOR DAUGHTER I WAS A ROYAL BBBB-III---CH...SO SORRY TO MY WHOLE FAMILY FOR THAT TIME I WAS BAD!! NOT BY CHOICE MANY YRS ON THAT STUFF...WITHDRAWL WAS A KILLER!!
.REMICADE WAS AFTER THE CYCLOSPORIN...REMICADE WORKED FOR MANY YRS LONGER THAN ANYTHING ELSE...APPROX 9 YRS...OH I FORGOT THE CYCLOSPORIN MADE ME GET HIGH BP AFTER A COUPLE YRS...BUT WHEN IT WORKED IT WORKED WELL...THERE ARE RISK WITH EVERYTHING, BUT I'VE BEEN VERY LUCKY..I'VE HAD A LOT OF RELIEF FROM MY SKIN SINCE I MOVED TO TEXAS (FROM MISSOURI) ALMOST 11 YRS AGO...THE SUN SHINE HAS MADE A BIG DIFFERENCE!!! I'M WIDOWED 2 TIMES, AND MARRIED NOW,,TO A GREAT GUY ALMOST 15 YRS TOGETHER...HE GOT HIS FIRST SPOT OF P EVER ON HIS SCALP A FEW WEEKS AGO..NEVER HAD IT IN HIS LIFE ..HE WILL BE 50 IN A FEW MONTHS..WE ARE VERY HAPPY!! ; ) AND MY DAUGHTER HAD BABY #8 A FEW MONTHS AGO.. HE IS IN HOSPITAL HE WAS VERY PREMATURE..BUT HE IS DOING GOOD...I FEEL QUALITY OF LIFE NOT QUANITY OF LIFE.... I HAVE WONDERFUL QUALITY..I'VE NEVER BEEN HAPPIER....A LOT OF FOLKS ON HERE SEEM PRETTY DOWN I'VE HAD ALL THIS SINCE I WAS 12 YRS OLD...I DECIDED LONG AGO I WASN'T GOING TO LET IT KEEP ME DOWN..I DID EVERY DRUG STUDY I COULD..SOME WORKED GOOD SOME BAD...BUT I'M HERE I'M HAPPY AND I WISH EVERYONE ON HERE THE HAPPINESS I HAVE...THERE ARE BAD DAYS, BUT MORE GOOD THAN BAD' THE ARTHRITIS HURTS AND THE SKIN IS WORSE...BUT LIFE IS GOOD; )

Comment by Melissa Denise on February 5, 2010 at 5:54pm

JamieLynn, sorry to hear the Stelara isn't doing the job. My Arthritis doc just suggested checking with my derm doc to see what they thought. I am on the Enbrel, which does wonders for the arthritis, but makes the P worse it seems....I know the Prednisone works, but boy it is terrible for your system. I was on it a very long long time, and came off,it was horrible, I haven't taken it since. Hang in there!

Comment by CINDY LUTTRELL on February 4, 2010 at 9:51pm

JUST GOT SHOT# 2 ..SEEING SOME IMPROVEMENT SCALES ARE A LOT BETTER NOT THICK AND WHITE NOW RED & HOT..BETTER THAN A CONSTANT SNOW STORM. SOME SMALL SPOTS GONE