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I have had psoriasis since I was 17. When I first broke out it was on my back and my forehead but eventually worked its way to my knees, legs and arms. For many years I went to doctors, not dermatologists, who didn't know how to treat it. They just gave me creams and steroids. Some worked temporarily but it never lasted. I also tried over the counter treaments like Loma and other lotions but never worked. In 2007, I finally decided to go to a dermatologist. I did my research before going to make sure I found a top dog here in Dallas. The first treatments were creams, which didn't work. Some light therapy, which helped until I quit. Then finally Enbrel. Enbrel took forever to work but once it did I remained clear for almost a year. Last summer was the first summer in forever that I could wear shorts, tanks, skirts and a bathing suit. It was awesome. Looks like I won't be doing that this year though. I flared up while on Enbrel, I think mostly due to stress around the holidays and deaths in the family. So now I am involved in a research study. I haven't seen any results yet so I am guessing I am on placebo but at week 16 they switch me to the real thing. I am miserable right now though. It is the worst it has ever been. I can't use any rx creams while on study so I go through at least one tube of heavy creme and a box of oatmeal bath treatments a week. I am spending more $$ now than I ever did on rxs!! I abosolutley refuse to change my diet and my lifestyle though. I have done lots of research and those types of changes and they are not medically proven to help. I am stubborn and skeptical like that in all areas of my life!

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Comment by Cindy Foe on May 17, 2009 at 8:54pm
Hey Hollyrae! i understan the way you are feeling right now more than you could ever know...My doctors have taken me off everything used for psoriasis treatment...I have had some health issues lately and they are trying to figure them out without any kind of other treatment in the way...right now I am at 90% coverage...I have it on my hands so bad that I wear gloves to keep the stares down...I have a hard time wearing tennis shoes right now due to the psoraisis on my feet...I have so much pain from the skin lessions right now that I can barely walk...having three small children (ages 4..5..and 7) that makes normal life difficult for me...I do a bath soak you might give a shot just to get a little bit of a relief...I put 1/2 a container of the dead sea salt (I get mine at walmart in the bath salt area)...1/5 a bottle of baby oil...luke warm water....I soak in there for about 30 mins a night....I always let the water out and run a bit more in with my regular bath soap...I wash off like this because the salt will make you itch if you dont fget it off your skin...once out of the bath i dab off with a white towel...I wait till all the baby oil has soaked into my skin...then I put on some baby lotion...I let it soak in and then head to bed...hope this helps...Keep the faith that someday we wont have to be in such pain and we wont have to be so miserable!!

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