No Help For this Psorimadness.!!!!!!!!!!
Hello everyone. First my heart goes out to all of you for I know your pain first hand. I will try to make this as short as possible. I think I started with my psoriasis long ago with different things showing up at different times and not being able to put it all together.
In 2007/2008 I was working as a floral designer standing on my feet all day. I had problems with my feet before but this was a nightmare. On a pain scale of 1-10 it was a 10 all day every day plus my shoulders,arms and hands hurting to especially on the drive home. I started the job in Oct and by Feb. my boss said I should be making 18 arangements per day which was a out of line, most of the other desiginers made around 14. I told him of my medical issues and that I needed to see a dr. to find out what was wrong and to take care of it and then I should be able to pick up speed but needed to wait till my ins. kicked in. He seemed to understand but I should of had it all documented and had him sign it, big mistake on my part.
My insurance finally kicked in the month of March and I made drs. appts. When I went to the podiatrist he looked at my ex-rays then he asked to see my toe nails and wanted to cut them a little shorter( I nearly hit the roof in pain) but survived it. Then he asked to see the patch I had on my elbow and my ears and my fingernails. He asked me questions and said that I had psoriasis and psoriatic arthritis and needed to see a rheumatologist. He recomended one and I made an appt. Before I got to see the rehumatologist my boss laid me off. Bye bye to that appt, my ins and any hope of getting complete diag.
Since then I have been looking for a job and couldn't find a rehum that helped on life span ( a free program) Both the derm & the rehum there gave me exactly 5 min. of their time. So no complete workup and no disability so no med. help and the help I did find was of no help. I am not as bitter as I could be. Even though I have many flare-ups and pain with no meds, I am thankful that it is not as bad as it could be. I wish and hope that this New Year brings less flare-up's and less pain for you all. I try to always look at the positive and that get's me through alot. Thanks for listening
In 2007/2008 I was working as a floral designer standing on my feet all day. I had problems with my feet before but this was a nightmare. On a pain scale of 1-10 it was a 10 all day every day plus my shoulders,arms and hands hurting to especially on the drive home. I started the job in Oct and by Feb. my boss said I should be making 18 arangements per day which was a out of line, most of the other desiginers made around 14. I told him of my medical issues and that I needed to see a dr. to find out what was wrong and to take care of it and then I should be able to pick up speed but needed to wait till my ins. kicked in. He seemed to understand but I should of had it all documented and had him sign it, big mistake on my part.
My insurance finally kicked in the month of March and I made drs. appts. When I went to the podiatrist he looked at my ex-rays then he asked to see my toe nails and wanted to cut them a little shorter( I nearly hit the roof in pain) but survived it. Then he asked to see the patch I had on my elbow and my ears and my fingernails. He asked me questions and said that I had psoriasis and psoriatic arthritis and needed to see a rheumatologist. He recomended one and I made an appt. Before I got to see the rehumatologist my boss laid me off. Bye bye to that appt, my ins and any hope of getting complete diag.
Since then I have been looking for a job and couldn't find a rehum that helped on life span ( a free program) Both the derm & the rehum there gave me exactly 5 min. of their time. So no complete workup and no disability so no med. help and the help I did find was of no help. I am not as bitter as I could be. Even though I have many flare-ups and pain with no meds, I am thankful that it is not as bad as it could be. I wish and hope that this New Year brings less flare-up's and less pain for you all. I try to always look at the positive and that get's me through alot. Thanks for listening
Views: 4
Comment
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Comment by stephanie pryor on April 5, 2010 at 11:00pm -
i hope it works not for you and my god takes your pain away yours and mine god bless us all and give us a crue with love stepryor.
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Comment by Afifa Fatema on March 1, 2010 at 7:39pm -
Hello! and thank you for giving me your time also! :-) It does mean a lot even if few lines are dropped. I am right there with you. I also had to quit my job because I cant walk or use my hands too much. Also i lost insurence with my parents because I am not a full time student anymore. and actually i am kinda bitter, because i understand their policy but they are not understanding the fact that i did not drop school on purpose. well I am on methotrexate right now. and its actually helping a little bit because if i am not on anything, well lets just say i have crawled my way to the bathroom at times. I am not sure where you are located but in Dallas texas we actually have a free clinic in irving and my regular doctor goes there to volunteer. and at this point i paid the $80 fee for regular checkup. and my doctor actually managed to get me into a free program where i can recieve stelara when i am ready. so make sure you are seeing some good doctors, and also methotrexate costs about $30 for 16 pills. so see if you can just get a prescription from a local doctor for something. because flare-ups really can be a nightmare as you know! okie i m done for today. i write wayyy too much. thank you again. and bigs hugs! take care and be well!
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Comment by Cindy Foe on February 19, 2010 at 8:56pm -
Hey Joanne....first of all welcome to the family...second...big hugs from this southern gal that understands your pain.....i had a similar thing happen to me when i was younger.....my parents insurance created so many hoops for my parents to jump through to get me help....we searched things online for clincs and what not....my grandmother had heard of a possible clinic that would help people period....insurance...but couldnt make the co pays....or no insurance.....so we called the place having the clinic and it was true....they were holding a clinic and we were on our way....we traveled almost two hours away and waited in a waiting room for 8 hours before they could get to me......and then the ball started rolling....i suggest calling a few clinics and explaining your situation and see if they will see you.....also....you can try charity applications at health departments clinics and hospitals...you have to get help.....hugs and again welcome!!!!!
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